August 2009
thanks melissa and amanda, actually today i managed to tell one of my older brothers the whole story, he lives in uk -and i have a good connection with him.
I appreciate your comments and hearing your stories puts things into perspective for me as well. I wish I could get my son to access a site like this-he's good at burying his head in the sand !!
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August 2009
dear sailor, thanks for replying. I feel very isolated- told my extended family about the first cancer but havent told them that he has lost his remaining testicle. I think they will think of him differently- also such a personal, emotional burden for him to carry for the rest of his life- dont want to add "pity" to the pile.
cheers
Maddermax
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August 2009
Its been 7 years since my son was diagnosed with testicular cancer.
He had just turned 15. At the brink of manhood , a teenager- and we all know what this is like !! and diagnosed with a cancer he felt he couldnt share with. Luckily a few weeks before he told us a TV programme about TC was on and he saw it and checked himself, he told us he felt a lump within a few days- I felt at the time someone was looking out for us.
He didnt even want us to tell his siblings at first- Paranoia was in the air. My husband took it all very badly- first born son syndrome-we werent to tell anybody- secrets, secrets and more secrets...
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August 2009
Hi new here. My son has recently been diagnosed with testicular cancer again. He is only in his early twenties. First time he was 15.
Feeling frustrated at the public hospital system as doctors changing or relocating- cant get an appointment to see endocrinologist at the hospital for 5 months-- how did they think he was going to manage.
Also no offer of emotional help- not that he would accept it- still would be nice to be offered it.
He luckily has a sympathetic GP who got him to a private endocrinologist- but that took three weeks.
His second last CT scan showed a spot on his lung- he recently had another one and the spot is still there- no bigger.
There doesnt seem to be any urgency for follow up treatment- re radiation/chemo- just in case it has spread- how long do we have to wait.The reason they didnt put in a prothesis was because they said it would interfer with the radiation/chemo- and yet that isnt happening.Now he will have to have it done electively-he cant afford to wait or pay for it. Too many doctors with too many opinions.
Before his last op he was self-harming, drinking too much, several sexual partners and I'm at my wits end. Maddermax
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