Hi Sch, I think I've read almost everything I can find about thyroid cancer and really don't want to read anymore 😉 . Yes I've perused everything on the cancer.org site. I finished my radiation treatment at end Jan 21 and subsequent throat issues peaked mid Feb and finally got me to a stage where I could swallow my own spit again and contemplate something with substance by the last week of April. I started Lenvatinib that same week and it reactivated my throat and by week one of May I could again barely swallow. That started to improve last week and finally today i've had a bacon sandwich with a minimum of fuss. So as to how I'm feeling, being so central to everything, as my throat has improved so has my general well being. Today I feel great but I need to watch that and not try to go back to my old self and work in the yard all day, have a couple of beers, get up at 5am and work again... for the foreseeable future I think I'll have to take it all very easy. My next scan is scheduled for Wednesday week and hopefully it'll show no further growth or best hope a reduction. I'm really surprised that there is so much info about this drug out there but seemingly no experiences anyone wants to share... Thanks for the questions.. its quiet cathartic actually "spilling" on a site dedicated to cancer.. Cheers John
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Hi, I've been on Lenvatinib (24mg) for thyroid cancer in my lungs now for 6 weeks. Following radiation therapy and the attendant fried throat, this drug has reactivated all that pain and has me eating with very small mouthfuls and a sip of water in order to get it down. Does anyone else have any experience with this drug?>
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Hi, after a 4 week bout of scratchy voice last September I finally went to my GP who wanting to be thorough ordered CT scans of sinuses and chest. Long story short I was diagnosed with Thyroid cancer and a T4N1B M1 Poorly differentiated papillary carcinoma on there left neck which has spread to my lungs and described as "innumerable spots" with the largest being 20.6mm x 18mm. December 20 saw a 10hr op which removed my thyroid and the poorly differentiated sucker in my neck. 30 days of heavy duty radiation therapy, then followed by radiative iodine which was to have cleaned out the thyroid cancer in my lungs. This failed and it turns out that the lung lesions are related to the poorly differentiated carcinoma and would not respond to RAI so... I'm now on a targeted chemo drug called Lenvatinib (24mg) which has side effects that have turned my previously healing lacerated throat back into the fires of hell... 🥴 I've been on this drug 5 weeks now and will have my next CT in about 10 days time and this will hopefully show no further growth or hopefully a reduction in the size of lesions. Phew!!! Does anyone out there have any experiences similar to mine? Cheers John Brisbane Being treated at RB&WH under Dr Brett Hughes
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.