I was initially told I had one thing, then the other and finally after retesting a larger part of my tumour they confirmed I had metastatic leiomyosarcoma which is a rare form of soft tissue tumour. After a lobectomy to remove one tumour I asked the surgeon more information. He was a loss on this type of cancer. I have since researched online more information which has helped, but has also heightened my anxiety without being able to consult a doctor. So I am at home recovering from this surgery waiting to head my surgeon to remove another two tumours one on my left lung and one on my ovary. I was also told that the fibroid removed 7 yes ago when I had a hysterectomy was the same cancer. I wondering if anyone else has had this type of cancer and how they coped waiting…
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I have just been diagnosed with stage 4 ovarian cancer that has spread to both lungs. It’s been Less them a week since I Went to the doctor feeling unwell to being told I have terminal cancer. I have had to be flown interstate due to border restriction I am in isolation for 14 days with no family support. I have to yet have biopsy to test type of cancer and to see what treatment is available. It’s so scary and lonely playing the waiting game with not being able to leave my hospital bedroom or get a hug from family. I’m so scared. I have feeling of why me I’m mot that old.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.