ow things ramped up quickly ....my surgery is this coming Tuesday had my preop on the Thursday just gone was not expecting this so soon. I went to my first appt last Monday they told me it (the total hysterectomy and Sentinel node biopsy) would happen within 2-3 weeks. So I felt like I would have some time to prepare the following day I got a call to say I was booked for following Tuesday and my preop on the Thursday. Took it of course and its been such a whirlwind full of anxiety and up and down emotions (my poor husband ☹️ ). I am really scared it has been a gradual realisation that the diagnosis of cancer is a looooooooooong drawn out process and really the surgery is actually part of the diagnostic process (if your lucky it can be the treatment and end there) its just harvesting all the cancer ridden tissue/organs so they can send it to pathology (this can take up to 2-3 weeks!!!!) where it is determined the type and grade of your cancer and THEN they will decide the treatment based on that. I ve been lucky I know that my process has been accelerated due to persistence circumstance and timing. All I know is the surgery cannot come too soon for me I want it gone I have started to feel really unwell in these last couple of weeks tired drained and achey. I have been having to have big sleeps in the day. Any way another major milestone is looming a particularly horrific one for me as I have major anxiety around surgery of any kind (due to a previous bad experience). All I want to say is that my cancer treating team have been so helpful to me they have been kind and understanding and supportive when I have felt out of control and anxious. My husband and family have been really supportive too. I know it has not come easy to my partner but he has stepped up and I dont feel like I have to divorce him now (joke of course humour really helps me to cope) 😂 😁 I have been exercising when I can nothing too crazy lots of walking and youtube exercise (such a great resource for exercise, yoga, meditation, sleep music) So thats the update I hope everyone else is doing ok Sending good vibes to everyone thanks for reading it helps to get it out Keep Safe! 👋 ❤️
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Thanks for your reply, I'm sorry to hear about your own recurrence and hopefully all else remains well for you. I think for hormones my mom will be OK since she's already gone through menopause but she does tend to be emotionally sensitive and her wellness in that regard is usually strongly impacted by her physical state. So far I have not seen her get a specific stage although based on the info it seems like 4A based on my research. This is very difficult to research and it's very difficult to find a broad/general online community (discussion board) about cancer that is active. Lots of info on cancer sites that is years out of date or medical studies that are only readable by doctors & researchers. Lost of online discussions for breast cancer, lung cancer, etc., the big ones. The best way I can help her right now is to help with her anxiety and nutrition and activity planning. Mainly to make sure she is part of the process of fighting this herself and not just leaving it to doctors with whatever medical treatments they incorporate.
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Hi there, 1st time contributor. I was diagnosed just over 12 mths ago with metastatic endometrial sarcoma which was found in my lungs and groin, following a Total Hysterectomy 6 years ago for a low-grade endometrial tumour, for which I didn't require any follow up treatment. This recent diagnosis came out of the blue and was a total shock as I had thought the hysterectomy had "cured" me. I have been told this cancer is incurable, however it is being managed with medication at this stage. I am on a hormone treatment that strips all oestrogen from my body, so I am unable to continue with HRT which had kept my menopause symptoms at bay after my hysterectomy. I'm fortunate in that my cancer is not causing me any pain or discomfort, and the treatment, at this stage, is easy, however if anyone is on a similar type of treatment I would welcome any advice on how to manage some of the menopausal symptoms. My main issues are with continual hot flushes, and constant vaginal dryness to the point that intercourse is painful and non-existent! I would appreciate if anyone on a similar type of medication has any advice as to how to combat these problems, without using any hormone based remedies. Also, if there is anyone out there who has a similar diagnosis I would be happy to connect with you. As it is classed as one of those "rare" cancers there is not much information to be found online or anywhere, even my Dr's have had trouble finding any real useful information. I'm thankful for this safe space.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.