Well what a roller-coaster rude I've been on, still no end in site but still trying to roll with the punches. I saw a new GP who is more helpful than my previous GP who was bloody hopeless. My new GP has given me a referral to see a new oncologist and has stated on the referral letter what's been happening and how I have passed my 3 month on the public waiting list. I will be making an appointment shortly. That's kind of positive news. I had the hospital patient liaison officer call me the other day and informed me that the specialist I was seeing is on a 6 month public waiting list, I've done half of that so apparently I have to wait another 3 months or if I'm very very lucky I can be called up at any time, which I find hard to believe now after every thing that's happened. If I had $25000 this specialist would see me and operate on me tomorrow without any dramas 😤 the Liaison person said that they are slowly starting elective surgeries again and they will start with the elderly first. Im still  praying🙏  that I get that willy wonka golden ticket and get an admissions date. ... View more

Good morning everyone. Well after my last thread I've really had NO luck, what I mean is, I tried to book an appointment to see the specialist I was seeing and after explaining the situation to the receptionist she said she'd try to help and she would speak with the specialist on my behalf (God bless her) this act of kindness really uplifted me because prior to this there was a brick wall after brick wall. The receptionist calls me back to somber news that he the specialist couldn't do much, then says that I don't need to make an appointment to see him! This guy for real 😠  I then called cancer council to speak to someone cause I felt I was losing it and thx God for these beautiful ppl they helped alot anyways she gave me the contact number to Liverpool Hospitals Patient Liaison Officer who I contacted and explained everything to, she said she would get back to me and that she would email the specialist as well. I'm still waiting for her call so I thought I'd be proactive and call her as well as call admissions, both straight to voice mail.  Im seeing a new GP tomorrow because my regular GP is sorry to say useless and im needing fresh eyes on my case. I'm hoping I can finally get steered the right way rather than hitting icebergs all the time.  For those who have been in a similar situation would I have to get scans done again to determine if this cancer on my kidney has grown? Its been 5 months since my last scans! Ive had a biopsy done as well as CT scans. How does it all work? I'm asking these questions because no one has explained anything to me NOT FROM THE HOSPITAL OR SPECIALIST I swear this is messing with my head so much... ... View more

Just called the admissions people at Liverpool Hospital here in Sydney and they have informed me that there isn't any date for my admission and that ALL elective surgeries have been put on hold until further notice due to corona. I have completed my 3 month waiting time set by the specialist. What now for me? Where do I go now or what do I do now? I'm so lost with all of this and I just feel so gutted 😞  ... View more