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rodrigo1111
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November 2022
November 2022
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November 2022
Thank you Kj for your time and kindness , it’s nice to know your CA 19-9 are under control , and so they will be , all the best for you and your loved ones 🌹
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November 2022
Hello guys, I would love if someone could share his experience in regard the CA 19-9 tumor marker related to pancreatic cancer. My moms recently gone under surgery, she got a pancreas tail cancer removed. My concerns are related to her current CA 19-9 Levels post-surgery: My mom’s CA 19-9 levels were: Pre-surgery CA 19-9: 49.7 U/mL 1-week post-surgery CA 19-9: 41.9 U/mL 1-month post-surgery CA 19-9: 44 U/mL (it did go up!) We were hoping this level went down post-surgery (bellow 27) but it didn’t, ive read patients have worst prognosis when this level doesn’t come down post-surgery, any opinions in regards is much appreciated All Best Rodrigo Details about her Diagnosis: Procedure: Distal pancreatectomy (tail of the pancreas). Tumor site: Tail of the pancreas. Tumor size: Greatest dimension: 1.6 cm (carcinoma). Histologic type: INTRADUCTAL PAPILLARY MUCINOUS NEOPLASIA WITH ASSOCIATED INVASIVE DUCTAL ADENOCARCINOMA. Edges examined: Proximal pancreatic parenchymal parenchyma. Distance to the nearest edge: 2 cm. Lymphovascular permeation: None observed Venous vascular permeation: None observed Perineural invasion: None observed Regional lymph nodes: N° of lymph nodes with metastases: 0. N° of lymph nodes examined: 30.
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November 2022
Hey Kj! I’m very happy to read your answer, glad you did make it to beat this nasty disease!!! Regard the undergo chemotherapy you were put through; I really like to know if you don’t mind me to ask, you did 6 months once with gemcitabine? What you did back then in parallel to fight the toxicity effects of the chemo? Your testimony is similar from a closed person of mine, who did the Whipple surgery + gemcitabine 15 years ago and beating the disease till today. My concern is that nowadays the current guidelines seem to suggest a much toxicity chemo scheme (Folfirinox or mFolfirinox) which is the same suggested to metastatic estadio of the disease which it’s not my mom’s current state. It will all depends on how well she can tolerate it (she overall healthy patient), I believe she will be fine, but we are still very worry on the side effects of these chemo scheme. On my mind, I want to believe gemcitabine which is has less toxicity would be enough for her, as this is suggested as preventive chemo treatment, but in the bottom of my hearth I know you can’t give any inches for this horrible disease to gain strength… Other that’s comes on my concerns and which maybe you have some better understanding, nowadays I’m assume you control the disease with periodic checks on the CA 19-9 level plus CT Pet/ Magnetic resonance. My mom’s CA 19-9 levels were: Pre-surgery CA 19-9: 49.7 U/mL 1-week post-surgery CA 19-9: 41.9 U/mL 1-month post-surgery CA 19-9: 44 U/mL (it did go up!) We were really hoping and expecting that the CA 19-9 level went down post the surgery, but it didn’t, some doctors told us before that it would come down to normal levels post-surgery (=< 27) others saying this is normal, I been reading patients have worst prognosis when this level doesn’t come down post-surgery but I’m not losing hope on this! For now I’m aware we are in a good position in this fight, and that its just about to start! Wishing you nothing but the best, and really appreciate your kind words Rodrigo
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November 2022
1 Kudo
My mom a healthy 69-year-old individual just got a resectable cancer removed from her pancreas tail. It is very rare to find a cancer like this at stage (1), we’ve been very lucky for now. We conocerned rights now is that if the chemotherapy is really mandatory because the majority of the doctors are suggesting a preventive chemo scheme, which is the same scheme applied to metastatic pancreatic cancer. We are not confidence enough if these prevention medicine could we worst than the disease itself, since nobody could guarantee you, the cancer will or not come back post-surgery nor post the chemotherapy. Our biggest fear is to make the cancer chemo resistant from the early stages if it comes back due the preventive chemo plus all the side effects of it. (we attacking the cancer with the most powerfull chemo used in the metastatic phase, what would we have left if the cancer not responding from the beggining) Would love to hear from people who shared similar stage 1 cancers and what did they do at the beginning.
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