Bad news. My partner had a scan last Friday and the result is not good. His second tumour in the front left temporal lobe has grown from 2x2cm in early June to 2.?? x 4.6 x 4.1 cm even though the original tumour site looks good... a bit of a mixed bag.
The doctor has decided to continue with Avastin and add Carboplatin to it for the next 2 doses before we decide whether Avastin works or not. Here comes the only good news we receive today, Roche has changed their policies after we pay for 2 doses so we do not have to pay anymore. How convenient after I questioned the amount of Avastin that the doctor prescribed being a bit lower than it should be due to lacking of proper weight check and adjusting the amount of drug to suits the weight prior to the infusion. My partner was 100kgs back in March when the doctor weighed him last and so he prescribed 1000mg of Avastin (10mg/kg) but he has since put on weight due to Dex and was around 120kgs when we made a decision to go with Avastin so he should have received 1200mg. I did mention about my partner's weight increase to the doctor but he took no notice. I also questioned the pharmacist at chemo day unit when I learnt that he would get only 1000mg which was odd but nothing was done about that.
I'm so frustrated with our medical system. The other day I rang up an oncology nurse to find out who arranges all this appointments for the oncologist and the scan because we initially had an appointment for MRI on Tuesday (tomorrow) while the appointment with our oncologist is for Monday (today) which doesn't make sense. I really hated it when she said "Smart girl, good on you that you figure it out it doesn't make sense. Now ring the MRI department and reschedule it to be earlier.". I'm not asking for a compliment all I need is someone telling me what has to be done and I can arrange it all myself instead of them stuff it up and need me to figure it out that they stuff things up.
Another stupid thing is we were given a number of registrar on call to call in case there is some issues. I called the registrar over the weekend due to my partner being sick but the response I received was "You've got the wrong number. (mmm... sorry they put me through to you.) I'm a registrar for stroke. I don't know anything about Avastin. I don't know your partner. If not urgent, wait until Monday; otherwise, go to Emergency." hang up....
I guess it's something I have to get used to and as the doctor said it could be all over in 2-3 months time. All I know is they can't fix the damn thing, how could they know how long someone is going to live for!?
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.