Still trying to find my way around this site so if you message me and I don't get back to you, it's only cause I'm lost. Thankyou to those that have sent me such lovely messages of support, especially Pimbok. thank you
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Contributor
Hi Nat, You'll get the hang of this site after awhile. Take it easy, and write as often as you want. Kim
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Contributor
Hi Nat This is a great site, you will get the hang of it :) I hope that things go well with your treatment, please keep me updated. Sending (((HUGS))) Sunshine
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Contributor
Hi Nat! You are a similar age to my husband who was diagnosed with a rare peritoneal cancer three years ago. Hang in there and hang out in here....... Such good therapy and support from others when you feel poorly. Don't forget to breathe deeply.... Have you found a good social worker? Can be helpful, they sent me here...... Take care! PA
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Super Contributor
It is a good sight ,lots of understanding people here. It is a strange emotional time when you are first diagnosed. So many different feelings and it's easy to feel that nothing's the same and you are in a different place and it's not quite real.
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Thank you so much, I have be feeling quite isolated and alone, it really helps knowing people out there understand. I hope everything is alright with you and again thank you.
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I go in tomorrow for a tummy PEG. Have to say I'm pretty scared at the moment, the tought of feeding myself through a tube is about as much as I can take. Thank god for the wonderful people that work at RPAH, they are so kind and supportative. And thankyou to everyone for you friendly messages.
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The irony struck me that there are some people in the world, mainly some ladies, who would give their eye teeth to be able to be drip feed food for the purpose of shedding some kilos.Yet in a situation that you are in, the same practice has completely different connotations. You will soon get sick of eating soups, try counting how many varieties you can get through, and let us know which one is your favourite. Good luck for the coming days and weeks Nat wombat4
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Hi nat! Good luck tomorrow! Sending positive energy your way........ Remember to breathe when feeling overwhelmed...... And cry if you have to........ Let us know how you go! PA
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It's funny people keep telling me about the merits of positive thinking but I just keep finding that I can't help thinking the worst is going to happen and then when everything ends up not that bad, my spirit rises and I get though. So I think will keep doing it my way and they can so it their way. So getting a PEG is horrible and I wouldn't wish it on my worst enemy (not that I have any enemies) but I'm alive and the pain just helps me remember that I am ALIVE. Thank you everyone, your support was wonderfull!!!
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Hi Nat, There are so many who can relate, I live alone family & friends live interstate.. I found a lump, yep its a tumor, now wheres the primary...ah yes tonsil cancer... shock, despair, all those horrible concerns filtered through me, I have just finished treatment at the PA Hospital..They wouldn't put a peg in, just sent me home with a (nasogastric tube or NG tube).. i couldn't tolerate it so took it out, 13 kg's lighter, fatigued and weak, I started breaking down, then I was told about the Cancer Council and the wonderful support there is out there, although still despondent, i am realizing there are wonderful people out there full of encouragement. And I'm glad this site exists.
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I had to go and freeze some male stuff today just in case. What a surreal experience that was. I'm sure there are other guys who can relate. Public hospitals can't even seem to afford a magazine for the guys, or maybe it's just some stupid religious crap that stops them supplying a magazine of some sort. Anyway for someone who is scared and stressed it was absolutely a waste of time. And I should face it no woman has been interested in me in over a year so I can't see me needing it anyway. Sorry just having a purge... More dental work tomorrow and I haven't even started radio or chemo...
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Contributor
Oh pal! I hear you! When my husband was diagnosed, our son was 6 months old and I was still getting up twice during the night to feed him. When his onco told us that we would need to freeze his sperm as there was a chance that he would no longer produce some, we just looked bleary eyed at each other and said 'no thanks!'..... Although we did want more children initially...... It is something though that was not mentioned again until after his op, when we realized that he no longer had proper sexual function......to which one of the doctors replied....'well that would be my fault"...... To which my husband replied as quick as you like. "well I try not to think of you in the bedroom"...... Another piece of the cancer puzzle...... That is not mentioned much at all anywhere.....surely after all the poking,prodding, operating and such, it would be nothing to talk about this side of the equation.....in my husband's surgeons case, he has petty much held all of his internal organs except for his heart in his hands.... What could be weirder or more awkward than that!!! Hang in there....and just take every moment as it comes, coz it will come and then breathe and take the next one.....ride the wave as it were...... Thoughts and positive vibes headed your way tonight! PA
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Super Contributor
To Purpleangels, I am sorry to see the problems your husband has. Nathaniel,you will get better at using this site.
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Well week 2, still breathing but I would call it living. Averything tastes go awful, the government is giving me $450 a fortnight, yeah, my rent is $600 a fortnight, thankyou you bunch of miserable... Anyway not really sure if there is much point in all this.
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Contributor
Keep in there Nat, and keep fighting, you have been strong and done great so far. wombat4
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