Not a lot of time left

[jodielee12]

My sister has finally been told that she is dyeing from Peritoneal Mesothelioma. she has been so strong and has fought this thing all the way. she had the major op in Sydney and came home. she was never well but still fought the battle fought for as long as she could. she has to make a decision to have another op and more Chemo but it’s not going to save her life. she is totally devastated. All her life she has been strong until the last few months and we can see she is struggling with trying to keep warm, keep food down and just stay focused on the road ahead. We have no idea what is in store over the next few months and we can only walk the road beside her and give her support. :-( Linda

[donna18]

hi jodielee so sorry to hear the news i myself had peritoneal mesothelimoa i was told i had this diseas in 2009 after an hernia operation here in melbourne ! they told i had 12mths i had to look my children in the eye an tell them there mum is not going to be here much longer it ripped my heart out ! i then heard of proff morris in sydney who rushed me up there asap i had the operation on the 17sep2009 it was a 17 hour operation and everything that could go wrong went long i was there in sydney for 3 months i made it home for christmas !then in 2010 i was back up there i had another tumor in chest cavity ! so another operation to remove the tumor size orange and 3 ribs i am still in so much pain and scared every day ! but my luv for two boys i keep fighting i have been terrible sick with chemo its knocked for a six and had radio therpy ! but i have to keep going i dont wont to leave my boys without a mother ! so please tell her its hard but fight fight fight and i will pray for her and my heart goes out to be strong donna xxxxx

[jodielee12]

Hi Donna thank you for your support. My sister just rang at lunch time to say they cant do another op and that she will start 8 weeks of Chemo next monday. she is dissapointed that they will not opertate again so is hoping the chemo will give her more time. she is fighting this thing full on and we, along with her husband and family are all fighting it with her. i guess its a wait and see game but a very rough one at that. I wish you and your little boys all the best and will add you in my prayers. Linda xxx

[donna18]

hi linda im so sorry to hear they wont operate, ill be thinking of you all, and praying for your sister as she goes threw her chemo god bless you all xxxx

[jodielee12]

well the time has finally come. my sister is in hospital, not eating, vomiting and not good at all. she has had the biggest battle on her hands and has been awesome through the last two years. she is still pushing everyone away and taking it all on her shoulders. she does not want us rushing up to see her as in her words "i makes it final". so what the hell do we do? i live 7 hours away and would love to jump in the car and just go but will that be against her wish or do i just go. i text her and she tells everyone i am prestering her. i can understand she is frightened and i also understand why she does not want to see family but its too hard and i want to get off this roller coaster ride but i dont know how. she is my big sister. to go or not to go. will i regret it if i dont.

[SILLY]

That must be so hard for you ,wanting to be there but having to respect your sister's wishes . I can't imagine the anguish she is going through or you either . I would feel the same way you do ,wanting to be at her side .

[wombat4]

If it were me I would go and be with her, It seems like your sister has not a lot of time left. The illness, treatment and medication can sometimes make people say things they would not normally say. If you go to be with her and just stay in the background to let her know you are there for her. Its better than getting the phone call to say its all over. I was with my wife when she took her last breath, the most absolutely devastating moment of my entire life, but I was so glad I was with her.

[purpleangels]

Hi there jodilee! My husband had his peritonectomy nearly 4 years ago and has been struggling ever since as well. His left kidney packed it in last September, and now his right one is playing up. He too struggles to keep food down for any length of time and is so skinny, a stiff breeze would carry him off. I know how hard it is to watch and wait........but just take it day by day and maybe send your sister a card/ a text a day/ an email to let her know that you support and love her...... It is a struggle with my husband as he is in so much pain that we can barely touch him, so we touch him with our voices.......which is hard for a four year old boy to understand but he's starting to..... Good luck and loads of hugs coming your way! PA

[jodielee12]

Thanks. My sister is hanging in there. she is at home with Palative care. she rang me friday night and was full of beans. she said she is back on her steroids and you can hear it in her voice. she is almost hypo. spoke to her daughter today and they saw her yesterday and she said she can hardly get out of the chair. she is in so much pain and falling over, not sleeping and getting very cranky. she is not eating and is not allowed to drink too much. she said she is very thirsty but only has a cup and a half a day as its just building up inside her. i know most forms of cancer suck but this one is so painful and goes on for so long. i feel of her and all other suffers of this one. we get to see her again in a few weeks so i cant wait. its not fair we live so far away. Linda

[glenys48woods]

Hi Jodielee12, Is she out of hospital now? How is she? It must be terrible for you to have a sister in hospital like this. Why would she push u away after being in hospital for 2 weeks. She needs u as I would be there. She doesn't want u to see her like this. Just jump into the car and go. It must have been turture for u. Glenys x

[glenys48woods]

Hi Wombat, This devastes and puts fear in me me when you say this that the time you had for your wife having her last breath when she passed away as my husband has prostate cancer since 2001 and diebetes the last 3 years and not looking forward for him to pass away. You are a good friend to me. The last 2 weeks he has just had 2 tests over at the repat hospital and following up on next Wednesday and I hope this will be OK for him. I will go with Colin when he is told the results. We will pray about it. Glenys. xx

[sarah]

To all you poor darlings out there suffering the fear of losing the battle, or watching a loved one struggle on, it's too much for a person to bear, too much for the soul, it is understood. I am sure I am not going out on too much of a limb when I speak for others here but, we feel your pain, we really do and we are sorry, very sorry for your pain. God bless, may we be reunited with our loved ones again.