Last night my partner asked if I could take today off from work. I asked whether he was sick. If so, I will take a day off. He said no, he just wants me home with him. I would very much like to spend all my time with him but I am the only one doing the work and earning money to feed us both. I do not think I can afford to stop working. I have some saving money but not a lot and I do not know if there will be other things/services that I have to pay to provide the best care for him. Avastin took a big chunk out of my saving already. I also do not want to stop working as it means no income coming in and I will lose my skills. I expect to continue working for 20-30 years unless I happen to win tatslotto, not that easy as I never buy a ticket.
I have 6 weeks of annual leave and 4 weeks of personal leave that I have been trying to save up for the past year and a half with my current employer so that I can spend it when my partner needs my care. In a way I feel I should spend most of my time with him now while he is still aware of my presence, enjoy my company, feel the love and have a chat with me rather than leaving him all by himself at home and feel lonely now and spend time with him when he does not recognise me any longer.
I will have to see if I can afford to live with salary that I will earn in a part-time capacity or check out my partner's superannuation to see whether we can live off his super for a few months if I choose to spend more time with him, run out of leave and get leave without pay further down the track.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.