My mum was diagnosed with stage 4 Glioblastoma back in September last year. She has completed her 6 weeks of radiation and chemo and has now just started on her larger dose of chemo which is 5 days on and 3 weeks off. She got weaned of her Dex steroids but has deteriorated since coming off them. She has slurred speech, no balance and is sleeping all the time.
My mum has been positive through most of her journey. Unfortunately despite surgery to try and remove some of the tumor and radiation and chemo her most recent MRI has shown that the tumor has returned and hasn't responded to the treatment. Her prognosis is now only months to live. She is on anti seizure medication and is trying maintance chemo. I encourage you to stay positive and make sure you have supportive friends and family around you. I won't lie and say that it is easy but take each day one at a time. There will be times you will feel overwhelmed and exhausted. I wish you all the best for your journey.
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