Diagnosed 6 weeks ago.
Being treated as ovarian cancer but biopsy confirms cancer of unknown Primary. (CUP) Doctors can't confirm cancer start location could be pancreatic, colon,bowel??
scheduled for 18 rounds or Chemo about to attend my third of just 6 I have decided this Friday. Total hair loss within 3 weeks. Busy trying to organise paperwork, my Will, advanced care plan, enduring power of attorney, superannuation claims, income protection insurance, funeral plans, memo of wishes etc etc..,,, have two young children 10 and 2, live rural am a single parent. Taking alternative therapies gumby gumby, naturopathic supplements, cbd oil, Turkey Tail mushroom, and starting liquid bovine tracheal therapy when it arrives within the fortnight. Started acoustic sound therapy as well this week. Is it ok to have Chemo and alternative therapies at the same time? What did you do when you were diagnosed with stage 4 terminal illness? Who can help with completing superannuation claim forms? A social worker? I don't know if it's best to claim Terminal Illness or Total Permanent Disability and the implications of each? Have any of you made TI superannuation claims? Is it possible to receive national disability insurance scheme (NDIS) if you have cancer? How does one get all necessary paperwork done while receiving treatment? Is there such a thing a Chemo brain where you can't think properly, start forgetting things? I feel there is so much to get in place before the end comes. Not sure when the end will be, next week, next month by way of a miracle 5 years. What does the end look like? Love to hear from you my cancer sisters and brothers.
Welcome to the community.
I'm sorry to hear of your illness. It's never an easy message to receive or information to digest.
Do you have family or friends who you can take with you to medical appointments or assist you?
Am I correct in understanding that you intend on completing 6 of 18 rounds of chemo? Can I ask why? I am not passing judgement here.
If you are trying alternative therapies, I would be letting your oncologist know. They can then let you know if they think these therapies/medicines are not going to be compatible with your other therapies you are receiving.
I was only diagnosed with stage 2 bowel cancer, but in the past I was involved in an auto-vehicle accident that incapactitated me for 8 months. I made a claim for Total Temporary Disability (TTD) insurance. I received help in completing the paper work from a hospital social worker. The paper work can take a while to be processed, so I would recommend getting on to that sooner rather than later.
As for Chemo Brain, yes, there certainly is such a thing! You are not imaging this. It's general abscent mindeness, but just a bit worse. To work around this, you might need to get a bit better at note taking!
When you go to meetings or or a doctor tells you something, writing down in a journal. This will be a good strategy that will assist you.
Finally, a stage 4 diagnosis doesn't necessarily mean you are going to die soon. Talk to your doctor/oncologist about the prognosis, but it's not uncommon for life expectancy to be for many years. Obviously that depends on the specific circumstances.
Keep hope alive. *hug*
Thank you very much for your reply s.
It gives me great hope that you say stage 4 does not necessarily mean I will die soon. 🌺 Also
I worry that I'll become too Chemo brain to fill out forms, can this be the case? Thinking of completing 6/18 Chemo treatments as Chemo is apparently bad for the immune system and having it may only prolong life for mere months. To much Chemo arguably can be the cause of organ failure and lead to death not the cancer. Has anyone else had 18 rounds of Chemo?
Be part of this supportive community