August 2019
1 Kudo
What questions should I list and ask my dr during my next 3rd weekly 15min consultation of 18 before 6 hours of chemo, another pet scan, surgery discussions? Are there medical trails? am I having Pallative chemo? Why? why is surgery considered? When I'm terminal anyway? Should my hair be growing back after 9 weeks and total loss in 3? What do I leave/write/ say to my children? Apparently im 10% of population that plans my own funeral. What do I need to do? Live, dance, sing, listen to music, love, time with family, friends, preparing kids treasures boxes, paperwork inc super claims day to day stuff. Sit breathe and relax. Children in trusted care of Mum, sister how? Visited great grandma today. Very peaceful. She's 95. I told her we would be in heaven together. She looked me in the eye, held my hands told me everything's going to be alright. Xx
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August 2019
1 Kudo
Hope your mother reads this? Im 42, in my prime have 2 children 10&2. Whom I shall not see reach your age, or my littlest girls first day of school or my sons first day of high school and it sucks. Terminal ovarian cancer stage 4. Chemo. Diagnosed 5th July 2019. 3rd Chemo Friday. Sick and suffering with diarrhea right now. Single mother. My mother has basically moved in with me and is mothering all 3 of us. Time is precious, go build memories with your mother. Walk her to the garden. Read a book to her. Sleep beside her. Dr tells me Friday, depending on PET scan in 2wks if I'm responding to treatment I may live 3 years if surgery is an option, or up to 12 months if I'm not responding to treatment. How do you prepare to die? Be nice to be comforted by my children, friends and loved one. It is nice to be loved this way as your walking out the door forever.
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August 2019
2 Kudos
Captain Australis Write a book or 2 if you can. You're writing is fantastic. Easy to read, inspirational, interesting, relatable, thoughtful and thought provoking. I think about end of life. What do we look like? Pasty ghostly white, shrivelled like a dried grape, lying in bed with loud breathing sounds not able to move the body or communicate however see/feel all through eyes wide open? Until we're given a lethal shot of morphone and die? Do we leave our dead bodies and float to heaven, can we still be apart of our nearest and dearest after we pass?
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August 2019
1 Kudo
Thank you very much for your reply s. It gives me great hope that you say stage 4 does not necessarily mean I will die soon. 🌺 Also I worry that I'll become too Chemo brain to fill out forms, can this be the case? Thinking of completing 6/18 Chemo treatments as Chemo is apparently bad for the immune system and having it may only prolong life for mere months. To much Chemo arguably can be the cause of organ failure and lead to death not the cancer. Has anyone else had 18 rounds of Chemo?
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August 2019
3 Kudos
Diagnosed 6 weeks ago.
stage4. Advanced.
Being treated as ovarian cancer but biopsy confirms cancer of unknown Primary. (CUP) Doctors can't confirm cancer start location could be pancreatic, colon,bowel??
scheduled for 18 rounds or Chemo about to attend my third of just 6 I have decided this Friday. Total hair loss within 3 weeks. Busy trying to organise paperwork, my Will, advanced care plan, enduring power of attorney, superannuation claims, income protection insurance, funeral plans, memo of wishes etc etc..,,, have two young children 10 and 2, live rural am a single parent. Taking alternative therapies gumby gumby, naturopathic supplements, cbd oil, Turkey Tail mushroom, and starting liquid bovine tracheal therapy when it arrives within the fortnight. Started acoustic sound therapy as well this week. Is it ok to have Chemo and alternative therapies at the same time? What did you do when you were diagnosed with stage 4 terminal illness? Who can help with completing superannuation claim forms? A social worker? I don't know if it's best to claim Terminal Illness or Total Permanent Disability and the implications of each? Have any of you made TI superannuation claims? Is it possible to receive national disability insurance scheme (NDIS) if you have cancer? How does one get all necessary paperwork done while receiving treatment? Is there such a thing a Chemo brain where you can't think properly, start forgetting things? I feel there is so much to get in place before the end comes. Not sure when the end will be, next week, next month by way of a miracle 5 years. What does the end look like? Love to hear from you my cancer sisters and brothers.
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