Hi to everyone. I've just joined this site and wanted to know if there was anyone with my type of cancer out there. All the posts I've read are at least 3 years old. I'm hoping to connect with someone
Hi @mannagum and welcome to the Cancer Council Online Community!
Is there anyone out there who may have experienced or is experiencing the same cancer as mannagum, that may be able to connect with her?
My ACC began in the nasolacrimal duct(tear duct) and lacrimal sac but had spread into the nasal cavity . Since treatment throughout 2010 there has been no sign of cancer . I had my final check up in April this year and won't see my ENT or radiation /oncologist if and when metasteses occur . My only scans now are annual chest xrays .
I have just joined and read your post
I have ACC - actually this is my second fight with the rotten thing. 12 years ago I had a tumour removed from a very unlikely place, my leg, and now it’s back again. This time, in the lung.
I am scheduled for surgery this coming Wednesday. Not a great Christmas, but I will beat this thing again.
Happy to to chat with you if you need it. ACC is pretty rare.
Yes, from memory, back then no-one had ever had it in the leg.
I’m having surgery at St John of God, Geelong. I must admit, I’m pretty scared.
Wow - 2 weeks!! Did you have ACC?
I hope being at home is speeding up your recovery. Take care and Merry Christmas!
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