Hi everyone. Today is the first time I have visited this site, so you will have to bear with me while I find my way around.
My initial diagnosis (just on 2 years ago) was advanced breast cancer, with widespread boney mets. Boy - did that diagnosis come out of the blue!!! I initially went to doc's with about 1/2 doz lumps on my back, but was told these were nothing more than fatty tissues. After about 12 months, I demanded that two of them be deep core biopsied, and yes, you guessed it - results came back stage 4 advanced breast cancer!!!! I had a full mastectomy (11 out of 14 lymph nodes were cancerous), 6 months chemo and 6 months radiation. In Sept 2010, a scan showed that the cancer has 'eaten a hole' in the C4-C5 area of my neck - I received 5 days radiation on my neck, and now wear a soft collar neck brace whilst driving, just to protect my neck from sudden jolts.
Just recently the lumps have returned and my CA15.3 cancer marker is rising again. I have just started on oral chemo XELODA (Capecitabine) and would be interested in hearing from anyone who has also had this treatment. I feel really weird taking this oral form of chemo, as it just seems that 'nothing is happening'. I wonder does this drug have the same powers that IV chemo has?
If anyone can answer this question, I would appreciate it.
Please keep well to all of you who are undertaking this journey!
hi and welcome! 🙂 i dont know much about the tablets but they must work or else docs wouldnt supply them.. its a good thing you dont feel to sick with them.. how long have you had cancer for? wishing you all the best vent away on here if you need to! xo maddie
Hi guys, thanks so much for the welcome and the kind words.
@Maddie, I was diagnosed 2 years ago. So much has happened regarding treatment, setbacks, doc's, scan, etc that the time has just flown. I see just as many docs now and have just as many scans, tests as I did when first diagnosed, which makes it really difficult to plan and enjoy my time.
After reading some of the problems other members are facing on their 'journey', especially some of the mouth, nose and throat cancers and the treatment/surgery for these, I am feeling 'lucky' that I have breast cancer. Trust me - that is one thing that I never thought I would say, - that I am lucky to have cancer!!!
I am sure we all face our problems with 'guts and dertermination' regardless of what type of cancer we have. This is a long hard journey for all of us, carers and family moreso than the patient.
I wish everybody well with their treatment and their progress. 🙂
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.