I hope you are doing well. I've been bugging other people for the meanings behind their names. What is behind sch?
I'll give you an update on my morning routine as of today. Yesterday was a shocker. Any suggestions? I'm all ears.
I've started with lemonade flavoured hydralite. The least ghastly flavoured of all, until you mix warm water into it. Then, it is just as bad. Wash down a maxolon and Gastrostop to settle my tummy before I get into my Capecitabine, because I don't need that coming back up or making mad dash for the ileostomy bag.
I have poured some cornflakes to have with hot milk and usually add some psyllium husks to help slow down digestion. The dry cornflakes are actually sitting next to me now and I can't help grazing. They taste better than hydrolite with warm water. They are also helping to settle the nausea a bit too.
My wife just told me that grazing on my dry cornflakes is the sort of thing that all pregnant women do for nausea; and I should know that! Hmmm.
I'll take the Capecitabine midway through my cornflakes (with warm milk, if I save myself any cornflakes). I have to have it mid-meal with a full glass of water. With low appetite, getting these tablets in is a challenge. Despite the mental barrier I have for taking them in first place, nausea is a bigger barrier.
Hopefully that will start my day well. Hopefully I will get through this one easier. Scary part is... Yesterday could have been much worse. Any general tips you can suggest would be great. I'm keen to stay a functional human being throughout the chemo.
The name I've chosen is a little mundane. It's the initials of my name.
My name is Sean, and I have chosen to obscure my real name for the sake of privacy in the context of the broader internet.
Hot milk on ceral is a great idea. That reminds me of my travels to India.
What are the psyllium hosts for? I haven't heard of using these before.
As for tips on getting through this;
Hi. Life is made up of little things, and when I started chemo this week for stage 3 bowel cancer, I realised I took so much for granted. Some days I don't want to go for a walk, but force myself. Just looking at people and how well they are - just like I used to be - makes me upset. My chemo is for 6 months so I have a long way to go. God bless you.
First week. You are in for a journey. Are you on Capecitabine and Oxaliplatin?
I found the Oxaliplatin to knock me around harshly. The initial side effects hit fast and hard, but overall the first couple of days were bearable. The first cycle was hardest hitting on the fatigue side effect. My cycle started on Wednesday afternoon, Saturday morning I was full of energy and ready to go out, then around lunchtime it hit me. I can't describe it as want or don't want. I just couldn't, slept for the most part of 3 days before bouncing back. By that time, the Capecitabine was challenging me to start hydrated.
The Capecitabine was particularly tough on me. I didn't think I needed to call for help in the first cycle, but 20/20 hind sight is clearer. The next 3 cycles put me in hospital and were aborted early. I'm a rare case, not being about to handle the Capecitabine properly.
One of the most important things is to stay positive. I failed at this at the start of each cycle, but overall toughed it out. Strangely enough, when I reached the end of my last cycle, I thought I'd be happy, but it was a real anticlimactic experience. I felt more depressed and worn down.
These days I'm coping with my stoma reversal. Life with a shortened colon has it's own challenges. I feel like they left some details out of the brochure. It seems like life just changes after being diagnosed. Some normality has returned, but normal seems to reinvent itself often throughout a cancer journey. I guess that is something I can be certain of. Also that cancer sucks. And I'm very certain that chemo suck balls!
Hang in there. It will be tough and the end seems so far away at the beginning. On the upside, it is concerning that the years go faster as I get older. We'll this year has bucked the trend. This year, being 47, is the longest year I've experienced. It's taken the longest 10 months of my life so far. I may not live longer but it certainly feels like it.
i also have stage 3 bowel cancer with only 2 lymph nodes removed. I think I was very fortunate. Have had my 3rd infusion of Folfox and 9 to go. Just watch your body temps. I had extra 2 days in hospital with fever and low blood pressure. I'm on blood thinners which cause blood cells to drop as well. But I'm not feeling too bad. When I read what others are going through I thank God mine is manageable.
White blood cell levels dropped in my case.
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