I was diagnosed with OJC stage 1/2, 3 years ago. I had radiotherapy, and a drug (pill) called
Capeciteabain (or something like that), i.e. chemotherapy. I didn't have the operation recommended
by the surgeon, by reason of another pre-existing condition, which I thought would interfere with my recovery.
So far, there has been no recurrence in my oesophagus. I should be joyous, (I was) except that about 2 months
ago one of my oncologists decided to get a PET scan of my oesophagus and my brain. I got a c.d. of the scan
My interpretation is that there are very worrying black marks in the brain scan. I see my oncologist soon.
This is a truly inspiring story. Best of luck to you long may you live and provide us with hope.
i was diagnosed may 2017 stage IV oesophagous mets to liver and lung. On folfox within a week or so of dx. Just started round 6 yesterday.
had a Ct scan after 4 rounds, all tumours retreating. Lungs all but clear. Biggest liver tumour shrank from 94 mm to 30 mm. Other shrank 50%. A third focal liver tumour "resolved". Hoping beyond hope I don't become resistant to folfox and it continues to destroy the nightmare.
Sounds like you are doing very well. My last scan showed everything as stable. Neither forward or backwards significantly. I may be put onto follow too so I hope I have the success that you do.
Keep fighting the good fight.
Hi Davros, sounds like you are having great results with your treatment, I hope you have continued success.
Laat month we found I had a recurrence at the original tumor site, but it is only there and small. I have had 10 radiotherapy treatments and will have follow up ct scan in 5 weeks. If not successful I will go back on chemo.
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