Fibula / Jaw Replacement Surgery

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PMS
New Contributor

Fibula / Jaw Replacement Surgery

I was recently diagnosed with a mucosal melanoma in my mouth (11/4/17), saw the specialist on 26/4/17 and I'm now scheduled for Fibula / Jaw Replacement surgery on 24/5/17 – and it all seems to be moving so fast.

The enormity of replacing my lower left jaw with my right Fibula is hitting me and my concerns are about my quality of life post-surgery and not knowing if there are any alternative treatments I should be considering?

I am very active, bushwalking 3 hours on weekends and cycling 200+k’s per week commuting to work and for fun, so I would like to find out how this will be effected without a Fibula in my right leg.

Having a new lower left jaw and then undergoing radiation therapy so close to my brain is also daunting. I have looked online but I can’t find anything recent. I want to understand the impacts and side effects so I can be prepared and to also help my wife and 14 & 12 year olds to be prepared.

If anyone can help me with information of alternative treatments, what to expect or point me in the right direction it would be appreciated.

 

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Re: Fibula / Jaw Replacement Surgery

Hi @PMS and welcome!

 

What a full-on month you've had to date, how are you feeling about it all today?

 

 

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PMS
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Re: Fibula / Jaw Replacement Surgery

Kate,

Now im just waiting In a holding pattern.

Patience and inactivity is not my strong suit, so it's frustrating.

just making sure I remain in peak fitness, eating healthy, detoxing the liver to handle the drugs and enjoying life

Paul

 

 

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PMS
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Re: Fibula / Jaw Replacement Surgery

An update as at 23/8/17

I underwent the jaw replacement surgery on 26/5/17 which was an 11 hour operation. After a stint in ICU i went to the recovery ward and was just about to start back on food (soup, etc) rather than being feed through the nose and the blood flow to the flap couldn't be detected meaning a possible rejection. Back to surgery for a new skin flap (luckily the bone graft was holding, follwoed by ICU and recovery ward.

Next I had an infection of the flap which meant another operation, another stay in ICU and back to recovery.

This was followed by another operation when the flap began to fail again, plus ICU and Recovery, but this time the flap held.

I was released from hospital 44 days after admittance and 16kg ligther. I entered hospital at 77kg and zero fat, leaving at 61kg and zero fat, muscle, strength and stamina.

After a month of recovery at home plus 1 radiation treatment) I returned to work for 3 half days and im now doing 5 days a week of 6 to 7 hours per day.

Two weeks ago I start riding my bike again and my legs had nothing. My wife even outpaced me on a lap of Narrabeen Lakes. The recovery continues and the weight is going on slowly even though I'm eating 5 times a day,

My spirits are good and I wake each morning - you can't ask for more than that.

 

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