Hi my name is Judy.
I have recently been diagnosed with Renal Cell Carcinoma and underwent a nephrectomy last week. I also had a metastatic neck lymph node removed. I am due to see an Oncologist neck week and am petrified that she is going to suggest Chemotherapy.All the research I have done on RCC indicates that chemotherapy and radiotherapy does not work, The preferred drug of choice appears to be Sutent. Does anyone else have any experience with Renal Cell Carcinoma and its treatment.
welcome to the forums 🙂 ... apologies but i know nothing about kidney cancer but am sure you will get something out of this site.
You could do some research with reputable websites before you go and see your oncologist. Search some of the cancer groups around also to see what others are doing and see what sits well with you and your situation.
Good luck with your information gathering and sorry i cant help.
don't know a lot about RCC but I do know a few people who have had it. One in particular has been in for the long haul with Sutent and seems to be going OK. Some sort of special deal was done by his oncologist regarding the cost, but I don;t have any details.
Last Friday my wife was diagnosed with a renal tumor (6cm) and secondary lung metastases. It was only by chance it was picked up as there were no real clinical symptoms, so we are lucky in one sense that it was picked up "early" although it is already stage IV. She is having a radical nephrectomy this Friday coming. It has all happened so suddenly, we are still adjusting. Talk about bad luck she found her mother dead the day before she was diagnosed. So not a good July. Anyway hope to see some responses from some of those that have been there and back. We are banking on the mTOR inhibiting drugs knocking the lung tumors out. We are realistic enough to realize we will be unlikely to get a cure, but may obtain a level of control and quality of life.
Wow you and your wife have been through a lot lately! In some ways once you get into treatment etc... it gets a little easier with cancer. I think it gives you a purpose and sense of actually doing something about the problem
I do hope your wife's treatment goes as well as it possibly can.
I think I am in a similar situation to yourself, diagnosed in June, nepherectomy in July and radiation to my hip in August. No doubt you are a little further along in your journey and a whole lot wiser for it. I started on the sunitinib last week and so far haven't noticed any effects from the drug either beneficially or with side affects. Maybe it's a little early to tell. If anything a tumour in my left scapula has become more painful.
I would be keen to know how you are doing? well I hope.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.