adenoid carcinoma

[Hildi]

I was diagnosed with adenoid carcinoma in January 2019.  I had flu like symptoms for sometime last year, but a little lump came up near my nose/eye.  I thought it was just an infection & so did my GP & prescribed antibiotics.  But lump increased & GP realised there was an underlying problem.  January 2019, she referred me to specialist Dr Daniel McCormick, who immediately arranged that I have my operation at St Vincent's Hospital, Melbourne, attended by a team of specialists.  Operation was successful.  Medication unfortunately had horrible side effects.  But that is not my issue, I am back in Hobart.  I commenced my first radiation treatment yesterday.   I would like to get feedback from other people about their experiences.  I was given a list of all the things that can go wrong & that plays over & over in my mind.

[Katekat]

Hello @Hildi and welcome,

How are you doing this morning?

Sorry to hear you have been experiencing side effects from the medication, can I ask what medication you're on? That might help with others sharing their experiences. 

Also, what sort of side effects are you experiencing? How are you finding the radiation treatment?

-Kate

Cancer Council Online Community Manager

[Hildi]

Not on any medication since leaving hospital, thank goodness.  I was on endone.   Currently undergoing radiation.   Can anyone relate their experiences for radiation on the face.    I have been told to expect the side effects in 3/4th weeks.  I am going into my 3rd next week 

[SILLY]

Sorry I was so long in replying to your post . I haven't been on this site as much as I used to be . How are you now ? 

[SILLY]

Heidi 

Do you mean your diagnosis was Adenocarcinoma or Adenoid Cystic Carcinoma ? 

[SILLY]

Sorry , I should've called you Hildi not Heidi .