head and neck cancer - radiation treatment and losing weight

Dee58
Contributor

head and neck cancer - radiation treatment and losing weight

I'm having 7 weeks radiation treatment plus 3 chemo treatments interspersed... As of current plan my last treatment is around middle of May...

 

I'm at that stage that even drinking water is painful... I hold saliva in my mouth for as long as I can because obviously swallowing that isn't a barrel of fun either.  I'm on a liquid diet (Ensure and Sustagens)... 

 

Radiologist kinda told me off today for losing too much weight .   Sort of goes with the territory 😞   Mentioned something about reporting it to my oncology doctor who I am seeing on Thursday and something about having to do my scan again.  She seemed almost angry.

 

If they have to rescan me due to weight loss is that such a big deal?  Or is it going to cost me a fortune to have it done anyway?  I'm going thru this as a private patient - not public.  

 

Has this happened to anyone else?  I'm just trying to figure out why she made me feel so bad...

 

2 REPLIES 2
Budgie
Super Contributor

Re: head and neck cancer - radiation treatment and losing weight

It's not like you're deliberately trying to lose weight. Some doctors!
I suppose she was getting angry because if they have to rescan you ,they might have to do more little tattoos. You're make extra work for them - how dare you? Did you have tattoos or a mask? I've had about 8 dots tattooed on me over the years.
Dee58
Contributor

Re: head and neck cancer - radiation treatment and losing weight

@Budgie

Hi...  Both - the mask, and tattoos I had the stick on ones, not the permanent tattoos... but that's their job isn't it? Doing those things?  Isn't that part of it?  Anyhow, she told me this morning she'd spoken to my oncology doctor about my weight loss and they looked into it and he said I'll be fine but try not to loose to much more - ha ha... well that's not like something I can promise... I'm not trying to lose it now... it's just coming off... mind you, I started with spare weight to begin with so as far as I'm concerned I'm hardly at risk of malnutrition although I gather thats not what bothered her - the radiation program was set up for me at the weight I was when I started, not the weight I am now... but seeing as mostly everyone does lose weight with cancer you'd think they'd factor that in... no?

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