Mouth pain post chemo radiation for head and neck cancer

[angieh]

Hello,  it is now 9 weeks since my treatment for throat cancer finished (3 chemo plus 35 radiation). I have recovered very well in all aspects except for ongoing mouth pain.  In particular my tongue and back of throat are still very sore and irritated. 

I eat all meals (PEG removed 3 weeks ago) but my diet has to remain very bland as I cannot manage anything that is even slightly spicy or acidic.  It is becoming harder to maintain my body weight.

I thought that my mouth and throat would be fully healed by now but that is not the case.  It would be super helpful if others who had similar treatment can advise me of their experiences re healing of their mouth and throat.

Thanks in advance,

Angela

[Budgie]

Hi Angela,

I only had 5 sessions of radiation on my jaw in January of 2018, my cheek is still quite thick & I bite the inside of it all the time. So, it might take quite a long time for things to settle back down for you, especially with so many sessions of radiation. I'm sorry I can't offer any advice or knowledge for you.
All the best
Budgie

[angieh]

Hi Budgie, thanks for your reply. 

I am probably being unrealistic expecting it all to be healed by now.

I hope all is going well for you.

Angela

[Budgie]

I'm fine thanks @angieh, 👍 plodding along nicely.
I'd call it wishful thinking instead of being unrealistic 😉.
Budgie

[Andz]

I got late side effects 3 months after treatment (35 R & 3 C). This was picked up on a routine PET scan 3 months after treatment, that has thrown a spanner into my life and uncertainty for another PET scan in 6 weeks