Hi @greg57 , Yes I saw my Oncologist before chemo, I did write a long post to Jennifer about what he told me but somehow lost the post frustratingly, but been too exhausted to try to re write it again. The chemo just makes me get very tired and I can barely do anything and hard to eat & drink enough water which I have to to flush my kidney. I can't believe some months back that I was so fit and going to my gym most days of the week and loving it, I feel so shattered, I hope I will get back there again before too long. My specialist said he would need to lower one of the chemo drugs a little to try to stop it damaging my hearing and liver & kidney which I was sort of not happy with because I want it to hammer my cancer as best as possible, but it's not made much difference to how I feel unfortunately. I guess it does mean though that it's working to battle the horrid stuff in my body. Anyway, enough of my winging! I'll rally through, I won't let it beat me😉 How are you going? Haven't heard from you for quite a while? Hope you're coping with everything, hope you're ok? Cindi x ... View more

Let us know how you get on, thinking of you xx ... View more

GOOD LUCK!! xx ... View more

Hi @Richard56 , I'm sorry I haven't got back to you sooner, I wasn't feeling too bad but the chemo sneaks up on you and builds in intensity, it's now knocking me around a lot and it's hard to think properly, but I'll persevere and keep going as best I can, I think to myself that it's good really as it means the battle is going on well against the cancer!  🙂 My tinnitus is bad but hopefully it'll quieten down after a while and it's hard to eat or drink as everything tastes off and....oh so many things but it's all doable. Just got to keep reminding myself that this chemo is the "good poison"! I'm glad you've started your treatment but hope the pain's not too bad, hopefully it will help your other problems too, and the Lexapro, I started that anti depressant so long ago that I can't remember how I felt on it at first, but keep going Richard as I know it was the best out of a few I tried and really helped me.It'll get better soon. My dose has increased now because of chemo stress and it really helps me, I take it in the mornings.I used to be on 20mg but increased temporally to 30mg. What dose are you on? At night if I'm feeling anxious I take a very small dose of an anti anxiety drug called Seraquil, only half a tablet ( about 10mg) which really relaxes me and helps me sleep and not worry, but wouldn't take a higher dose. I really hope your treatment goes well for you, you are in my thoughts a lot, sending hugs, Cindi xx ... View more

@scorpio2318, I just want to say my heart goes out to you both it must be so, so hard for you and your wife. Please try to get counseling ( together as its hard for you too) it will help her PTSD and worries, the unknown can be so scary, and please tell her to never give up hope,  and best not to look up stuff on Dr. Google as so much isn't true and also outdated, it just scares you. Stick to sites like this Cancer council ones,&  authentic ones. Wishing and hoping for the best outcome for your wife, just remember to never give up hope, & keep pushing as so much can be done now to help us all. Cindi xx ... View more

Hi @Jennifer66 , Just to let you know I just wrote you a long post but frustratingly it disappeared??!! saying something about wrong authorisation?? I'm so annoyed as it took me ages to write, all about my cancer report , so not fair, and now exhausted so will wait till I have some energy, sorry😔 xx ... View more

Hi @Richard56 ,   How are you feeling? I've been thinking about you and hope you're feeling ok.   I had my double chemo and first saw my Oncologist, he explained to me he'd have to reduce the amount of one of the chemo's as my kidney & liver aren't too happy and we just hope it doesn't ruin my hearing and tinnitus, I'm ok at the moment, I'll see how I am later. Usually the side affects start tomorrow.   Also I asked my Onc why my cancer was called "bladder cancer" when it was in the Ureter lining, he said it's all connected , as the lining goes from kidney down ureter and around bladder.   I hope your cancer is getting hammered from your treatment😁 and you're feeling better in yourself. Sending hugs Cindi x ... View more

Hi @Jennifer66 , Oh yes I can totally understand why you're hesitant to have the big op with no pain at all, I hope whatever you choose to do the outcome is good, we all have to have some hope.😘 xx ... View more

@Autumn27  Oh I'm sorry, did your Oncologist say you'd be having chemo for ever? Maybe they have a "maintenance" style chemo which is much easier I believe? I know a guy with lung cancer on this type of milder chemo (pills) and he goes about life as usual with no side affects. So there's always hope. xx ... View more

Hi @456Jack , I'm so sorry to hear about your mum, it's so unfair, so hard for you to know what to do. I had breast cancer last year but i was one of the lucky ones as they removed it all in time, but i just wanted to tell you I found so much help on the BCNA online forum, that's the breast Cancer Australia forum, so many on there that may have similar experiences so perhaps look there? This is also a great forum here but just think you may get more of what your looking for there. I wish you all the best and again I'm so sorry, you sound like such a caring daughter Cindi xxxx ... View more