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Deb1960
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June 2011
November 2016
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June 2011
Thank you BJS
I was begining to wonder if anyone else felt the frustration, the worst is friends who will not accept that this is the most likely outcome. My family have been great, we lost my step-dad 12 years ago and know that we don't all recover.
If I can accept it and deal with it why do they think that telling me stuff like you mentioned above helps me. Do they think they know better than my entire oncology team.
I was told by the leader in his field in Melbourne that he is very sorry but he can't help, I accept that this highly qualified man knows what he is talking about and has no reason to lie or give me false hope.
Sorry for the rant BJS but today they just pushed all the wrong buttons for me.
:)
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June 2011
I am getting a little pissed with the never ending but well meant assumption that everyone with cancer will recover.
I went to a Living with Cancer workshop today, and even there, I had to point out that we do not all survive even with all the advances in cancer treatments.
Sometimes our cancer is found just too late, and I got the usual response of people not wanting to talk to me or be near me when I tell them I am on palliavtive chemo to buy a bit more time.
This is really getting on my nerves, does anyone else experience this or am I just paranoid?
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June 2011
Hi Ben,
Good luck with the surgery, I call my colostomy my Belly Bum, I get to keep mine forever but it does have some good points, esp when I get the chemo runs, bags give u a bit more time to find a place to change them over :)
Deb
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June 2011
From my experience it is not unusual, with my cancer it was 5 weeks delay from emergency surgery until first meeting with oncology where I was told officially I had cancer and then it was another 3 months until treatment started but it will be different for everyone as we all have different cancers and different stages and other factors eg. general health, other medical issues, where you live & which hospital you are using etc will all have an impact on the time delay
Deb
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June 2011
Hey everyone, this is not a "nice" subject but I wonder if anyone else on chemo for their bowel cancer and who also have a colostomy has ever passed hard bits, pea sized bits? It is not poop.
I have asked my stoma nurse but the answer was not helpful, she suggests it has something to do with the chemo and the lining of my bowel.
Does anyone have any thoughts?
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June 2011
HOW DARE YOU !!!!, we have enough to deal with in our lives without you doing this ?
Have you heard of Karma?
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June 2011
Hi Silly,
I have not had to pay for very much at all, a few meds and one test that my surgeon did in his rooms and even then I only paid some of the bill out of my pocket.
Which state are you in? I am in Victoria.
Are you using public or private hospitals?
All my CT's & PET Scans and my chemo have cost me nothing, the hospital did not even charge me for any tests etc, what ever Medicare & Medibank Private pay them they accept as payment in full.
Deb
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June 2011
1. It is open 24/7, no appointments necessary.
2. It never says, sorry our time it up for today, esp when I have just got onto the subject that's really bugging me.
3. It does not have eyes, never gives you any "looks" if you have not had the look yet it will happen.
4. The people from Cancer Connections (staff) I have spoken with so far have been the nicest, most open to helping people you can wish for at this time in your life.
5. The more I read other peoples thoughts & stories the more I know I am normal, this is what really happens in our heads and lives.
6. It does not have a meeting ever Thursday to discuss you, nothing I say or do with any member of my cancer care team is private but they can sure change the facts, the I can't sleep because of the night sweats was turned into I can't sleep from worrying about dying in 2 easy steps and anti depressants offer as a solution. What the hell???
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