June 2012
Hi Peanutz,
It must be so incredibly hard for you. Hang in there and just take one moment at a time. Enjoy the talks and laughing when you can. It all sounds so cliche - sorry, it's not meant to be.
Take care,
Kim
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May 2012
Hi Tina,
I can't help you with the chemo side of things but I have had 5 weeks of radiation. I never had a tatoo before either, but my husband has always wanted one so I told him, I beat him to the mark 🙂 When I had mine done though, I felt like I'd been marked for life - bit silly when I had an 6" or 7" scar where they took out my tumor. What sort of cancer do you have? Where is it?
I found everyone connected with my radiation to be wonderful. Ask as many questions as you want to. I'm guessing they will tell you to put cream over the radiation area after each zap. Make sure you cover a larger area than they tell you so you are well and truly covered and put the cream on 3 or more times a day if you can. It really makes a big difference to the burn area.
I'm not sure how much you've been told about the radiation but ask your oncologist about internal scarring to find out what will happen there.
Good luck with it all and keep us posted as to how you are going.
Take care
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March 2012
Dear Helen,
I'm so so sorry. Tim sounded like the most wonderful man and husband. Thankyou so much for letting us know. I really am so sorry you have lost this beautiful friend and husband.
Kim
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February 2012
Welcome back Josh!!!!! It's so great to hear from you and to know you've been given the all clear.
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February 2012
Wow Tim!!! Can't believe you've written a musical! For anyone to write a musical is a big deal, but for you to do it in your circumstances is just mind blowing! Absolutely FANTASTIC!!!!
Absolutely brilliant! Good on ya! :)
Kim
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February 2012
Hi Jo,
You poor thing. I can't answer any of your questions but I know waiting is pure hell. Please let us know how you get on tomorrow? Good luck with it all. You're really in our thoughts and prayers.
Kim
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February 2012
Sorry Silly - forgot to tell you about Chris (husband). He came off his motorbike, fractured 4 vertebrae and had 1 unstable vertebrae which they thought would snap anytime. He had a 7 hour op which went well. Couple of weeks after the op, he was moved to a rehabilitation ward where he was then diagnosed with a moderate to severe brain injury. It's improving enormously, but he still needs watching to make sure nothing goes wrong.
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February 2012
Hi Silly,
Looks like maybe you've had a bad night?
Thanks so much for asking. Somedays are better than others and I'm hoping today is a better one. I'm still on the lookout for a decent physio who might know more about radiation damage but things have been pretty busy with my husband in hospital. He came home Thursday arvo and the next 2 weeks are going to be pretty full on, but after that hopefully will slow down.
Are you ok?
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February 2012
Hi Nat,
You'll get the hang of this site after awhile. Take it easy, and write as often as you want.
Kim
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February 2012
Hi Silly,
Really nice to hear from you. I'm taking 75 mg Lyrica once in the morning and once at night, and 2x Gabapentine 300 mg morning, lunch and night (1800 mg day). My surgeon is going to start cutting down the Gabapentine in a month or so and hopes to have me right off everything within 6 mths.
I'm actually sleeping not to badly, although at the moment my husband broke his back (he'll be fine but is still in hospital), so my sleeping and eating habits are a little erratic.
The pain I'm concerned about is stiffness (which hurts), the oedema (not quite sure how to spell that) and what feels like continuous, deep bruising all over the area. I don't really feel like the medication is making a big difference although I must admit it is a little better than it was (over several months). It seems that no one down here (Tassie) seems to know or care about this sort of pain. Funny - I had no pain when the tumour was in me and once the surgery healed up I was fine. I wish someone could explain exactly what is happening as sometimes it feels quite scarry and normally I don't scare so easily.
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