I have found our medical team to avoid being too specific on the prognosis/life expectancy subject. The reason for this is: they don't know. GBM is such an unpredictable disease and everyone's aspect of it is individual . Sure, there are some common reactions and of all the experiences I've researched here and overseas what I know to be true is we have no choice but to keep fighting and truly attempt to live moment by moment. GBM is still an extremely rare variety of cancer. So much is unknown. My husband believes they'll never cure it, just prolong life and preserve quality as they get better at understanding it and the medicines that work with it. A radio oncologist recently responded to my question like this: this disease must be so frustrating for you who have to work with it, how do you approach this frustration on a personal level? ' We just move on to the next one unfortunately". Anticipatory grief is wasteful energy. Try using your energy to care for yourself and extract moments that you want to remember. Take care, you're in my thoughts, Jo ... View more

Out of curiosity, where was the gout? I ask because my husband is having intense pain in he's knees, I suggested gout. Jobeth ... View more

It helps when you can take time from work, although I'm sure the loss of funds provides a different kind of stress. I'm still working and today I had a mini meltdown. 1 whole month on 2 hours sleep a day and no rest from work or cancer! Oh I feel so selfish but yet I know that I can't do everything, all the time. Be kind to yourself. I'm thinking of you both. Jobeth. ... View more

I know Min, it's scary how fast and aggressive this shit thing becomes. I honestly thought we would get another couple of years, no idea why I thought that, but I had convinced myself. Now, I sit and look at him and I can't believe that in a matter of weeks months if I'm that lucky, his chair will be empty and he will be memories in my mind! I kills me. Cherish every bloody second, GBM is a cruel and savage beast. Take care Jo x ... View more

Hi Tropical, How is your husband going? And, how are you coping? This terrible cancer can be so debilitating on all who are involved. It's a hard fight and it's not fair. I'm here if you need to vent or check in on the "what to expect" front. We are in the final stages, after almost 4 years, my man has fought a hard battle, he turns 52 next week. Way too young! Take care ... View more

The changes are hard to take Hun. The reality is stark. And the fear, is so real. Hold him tight tonight, cherish that love and keep your hope, it will help you help him. Thinking of you, jobeth xx ... View more

It's a delicate balance for me, my work. I've only been with this company 7 months and lets face it, corporate Australia is under pressure, cut backs everywhere. The truth is, I need my job. And, I'll need a break to recover and re-build after 'it' happens. So I'm holding on for as long as I can. I suffer feelings of guilt. I know I'll look back and regret not having spent more time with him but then again, he isn't who he was 2 months ago and back then we had the most amazing holiday in Paris, I can hold that memory close, forever. It's tough being the carer. How are you coping? Do have good support and are you taking time to care for yourself? I haven't been but this weekend has made me realise how fragile I am and how important it is for me to have some "me" time. I'm going to book a hotel a have a couple of nights away from home closer to work so I can escape. Go to the gym, catch up on baths and facials and nails etc. I haven't been to a hairdresser since early December, last year!!!! So, if you need an ear or some support, inbox me, I'm here and happy to chat, anytime. Hugs, take care xxx jo ... View more

Oh Terese, How are you? I read your blogs with tears, knowing how tough you were doing it. You have been to hell and back. I wish you healing and although distance may stop us from catching up and supporting in person, I'm here should you want to cry or vent or just recount him as the whole person, before cancer. Take care, I'm thinking of you. Xx ... View more

Thank you for your kind words and encouragement. Cancer is relentless and oh so cruel. Our fight is almost 4 years long and I'm now wondering, 'why'. What have we achieved? Everyday for 4 years dying has been a fear. Every night battling thoughts of impending doom to try and get some sleep. Doctors, hospitals and now dying has arrived, finally! I understand fighting the fight that has a percentage chance of winning. Fighting the fight that has no silver lining prospect, for me, now looking back, makes no sense, it's torture! It prolongs the inevitable and all those around the patient sit and watch with no control, their loved one slowly disintegrate, it has been my worst nightmare! I'm sorry for my negativity, but it's honestly how I feel today. I wish you all so much and I hope your stories are different to mine. I hope with all my heart that your fights can be won. That they get better and you can go on and life the cancer free lives you so wish for. Take care, stay strong and thank you once again. Jobeth xxx ... View more