About jobeth

jobeth

My husband used to get the disk and take it home to read but we aren't doing that anymore. Last August he misread a scan. He thought it was showing 'unchanged' when in fact there was a new tumour in the frontal lobe. Today we try and get the radio oncologist to read for us so we don't have to wait over the weekend. Tuesday is just too far away. How long since your diagnosis? We are 3.5 years with one return. The longest I've found so far is 6.5 years in Australia. My hubby's general health is fantastic. Thank you for your support.

jobeth

Gail - I'm holding on tight. Thank you. And to you too. For me, it's living without him that I fear most of all. I know when the beast hits in full force that I will hate watching what happenings and that I will start wanting it to be over. That is scary. But ultimately, being without him is too hard to think about. We met in 1987. We were married to other people. We met again in 1993 and date a few times. It didn't go anywhere. We married last month, he is 3.5 years in his cancer is GBM. He is the love of my life. I waited almost 20 years to be with him so selfish I am I want to keep him . Thanks again Gail..... Post results when they come (3 terrifying days till then).

jobeth

Except CANCER!!! FEAR of what happens after diagnosis. FEAR of treatment.. FEAR of that next investigation scan. FEAR of the time that you seemed to be doing nothing. FEAR of how people react to you, strangers in a shop or your work mates or boss. Do they shake your hand or do they look at you with pitty and slide away as quickly as they can. FEAR being left behind. Tomorrow is our next MRI. It's been 6 months since the last surgery and we have been told that when it reappears its more aggressive. Radiation and carboplatin aside, nothing stops this beast GBM in the end. So, we know its coming its just a matter of when and how fast it will happen. Somewhere someone is feeling fear too and fear that is much worse than mine today. I'm thinking of you, wherever you are with whatever you're facing. And, without you realising it, you are making me stronger knowing that you too are facing the same beast.. As Russell Crow's character in Gladitor said as he and the other slaves faced the tunnel before being let out in the lion's den, " we can fight this together and win. Or we can face it alone and lose".

jobeth

Hi Terese, It hurts to hear of others pain. How could you not be negative and miserable, you're going through the hardest thing you'll ever experience in your life. I understand. Im thinking of you and I'm wishing it ends soon, for both of you. Much love, Jo xx

jobeth

I hate the week leading up to an MRI. Every little thing takes on new meaning. A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear. How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.

jobeth

Hi Therese, In reading your blog I feel a huge lump in my stomach and fear that inhales me. I can't imagine your pain and desperation. And, I know I have this all ahead of me. People say, "be strong". I say, cry if you need to, vent, scream, just let it! I'm thinking of you and your husband I hope it doesn't take too long. GBM is the cruelest cancer, even though my husband is 3.5 years in this journey, I still find it hard to believe it's happening to us. Take care Jo

jobeth

People say, 'be strong'. I say, 'be whatever you feel you need to be to get through' . Crying is cathartic. It's an important part of processing what is happening to you. You're in my thoughts Lynne, take care and heal well. Jo

jobeth

Hi Mel, Thank you! You are an amazingly wise lady for your years. You are right, it's going to be a hard road ahead but with your attitude and clear thinking, you will be OK, eventually. I'm 45, my husband 51. He is a retired doctor, GP however can not practice anymore. I'm a senior executive in corporate Australia. I am still working, in fact I changed jobs only 5 months ago so life at work for me is pretty hectic. Between work and home I try to fit in a gym session, it's almost impossible and that's a cause for frustration for me. I love my healthy life and need to exercise to free my mind of all things that trouble me. It was never going be easy, right? :). Anyway, although you're in Perth I'd like to keep in touch. I'm sending lots of positive thoughts to Ben and you and your girls. Bye for now, Jo.

jobeth

Thank you Irene, I find some comfort in your story. Your husbands journey of almost 7 years is somewhat of an inspiration to me. I read the survival stats and I find myself terrified by what time we may not have. Although we are in our forties and have known each other over many years, we married only 2 weeks ago. I don't feel my circumstances are any more heart wrenching than anyone else's. I'm pleased we're not raising a young family and I'm very grateful that his independence is still intact, for now anyway, I'm just being selfish in wanting to make memories with him for as long as I can. He is my greatest love. We have our next MRI on Feb 22, fingers crossed nothing has changed since the last one. The emotions in my house are starting to change in anticipation of that day but we continue to plan for nice things too. Again, thank you Irene. I hope we can stay in touch. Sending lots of positive thoughts to you both. Jo

jobeth

Min that's great that your hubby is keeping a positive mind, it can be hard to do. Elizabeth can be less than positive. I understand that she needs to 'keep it real' but in this fight you need hope otherwise, WHY.. I don't go to the visits with my hubby, I'm at work and he's ability to do these things is still very good. We have hardly any disabilities in fact, just short term memory loss and rage with Dex. Otherwise, life is as normal as it can be with cancer. We're in Coogee, if you ever want to catch up for a coffee, let me know. Life for us isn't easy and support can help ease the burdens. Take care, you're in my thoughts, Jo

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