Hi Nat 1977, I'm so sorry you find yourself in this situation. It's normal to worry while waiting for results, and I really don't think you need stress about the implications of worrying - unless you're resorting to unhealthy coping methods which I'm sure you're not. You could make an appointment with the GP to discuss why the specialist thinks you may have cancer and at the same time, you could tell them how worried you are. You may feel better just telling them how scared you are - even writing on this site may make you feel better if you feel you don't have anyone to talk to. There's also the cancer counselling line. Over the last 14 months, I have had many, many, many scary moments. It's been a long time since I enjoyed food and if you look at the time I'm writing, you can see I sleep badly too! How I managed with the worse times was to break time down into 60 second blocks. In that way if nothing bad happened, or if the sky was particularly blue etc etc, I could tell myself...that was a good minute! I wish you all the very best. ... View more

Hello Elvibee, I'm so sorry you find yourself on this board. We're a little older than your family. My husband was 51, I was 48 and our children were 16,17 and 19 when my husband was diagnosed with brain cancer last year. We moved interstate 18 years ago, and my parents have both died. My husband had an incurable cancer and it was really important to us to spend as much time as we could together. His family were welcome to visit anytime, but after the initial visit at diagnosis, we asked them to stay independently. We just needed to do what we needed to do. It was an extremely sad, exhausting stressful time. We had to make the most of everyday in the way we saw fit. He recently died after 13 months. It's wonderful that you're available to care for the family. Sit back, let your son know you're there to do anything he wants and wait for him, his wife and the children, to call on you. That won't alleviate your stress in any way, but in this case, I believe, your son has the ultimate say. I loved the fact my in laws understood we needed time to ourselves, and despite travelling hundreds of kilometres when they came to visit, accepted the fact we needed our space. From the perspective of your daughter in law... this is terrible for her and it is understandable that she has chosen to seek support from her parents. Although my parents have died, I enjoyed a visit from my brother earlier this year. This drew comment because it was at a time when my husband had asked his family not to come. My husband explained my brother was there to support me and he could do this in a way my mother in law couldn't. Please, I hope I'm not sounding too harsh. In my case, I would have been really upset if my in laws - or other family or friends for that matter - arrived at the house uninvited, particularly if we had asked them not to. We needed out time together. I wish you, your son and his family all the very best. ... View more

This is a tough one because of the age of your parents in law. I'm assuming your mother in law is also elderly and has no dementia. The Aged Care Line may be able to offer you some isight. They were really helpful when I was needing advice with my 85 year old mother. The chances are she has insight into the fact her husband's health is deteriorating and the implications of that deterioration. She's probably putting 2 and 2 together in her own way - he is 92 after all. Even some people who are told a loved one's dying remain in denial. It's so lovely her husband is trying to protect her and I'd be inclined to accept his decision. Your mother in law will be seeing her husband receive treatment as well as his decline. Sit with her and tell her you feel sad to see her husband feel so unwell. She may open up to you...or may not. Times have changed. We talk so much more openly now. I'm a new widow myself (on the one hand I'm sad for our children and me that he was only 52, but I'm now feeling so sad for your mother in law) and over the 13 months my husband was dying of brain cancer, we were so protective of eachother. My husband didn't want to tell his mother and sisters he was deteriorating. They were interstate. I explained to him that is was really important they knew and I placed the phone in his hand and said he had to call them. I would never have called them. When my husband's father was dying of cancer he chose not to tell his ex-wife and adult daughters. They hated receiving that phone call saying he was within days of death. Once again, they were in another state and hadn't been witness to the deterioration. I wish you and your family all the very best. . ... View more

Peace and solitude have arrived after a courageous 13 months. I will continue to pray for all affected by this awful disease. xx ... View more

I'm thinking of you both jobeth. ... View more

Hi Smiley, I'm glad your husband has responded well. Hopefully the response is due to the Avastin. Good Luck for Wednesday's MRI. Wednesday's my husband's first dose. Here's hoping!! ... View more

Dear Sezzy1983, My heart breaks for you and your familly. I can't imagine travelling this road with babies, and I admire you for doing an amazing job. Every single Brain cancer carer on this board understands your fear and sadness. There was so much talk of the 'new normal' when my husband was diagnosed. For some reason, I thought it would be a happier, more content time. Unfortunately, this GBM diagnosis has kept us on our toes and I only recently realised THIS IS our 'new normal'. Having said that, compared with you and others, we've been fortunate. My husband has remained essentially himself. He can't stand looking in the mirror, but without the steroids, he couldn't function as well as he does. Do you have family and friends who can help you with your emotional and phyical work load? I'm so sorry I can't offer you anything else. Please take care. ... View more

That's really sad news Jo. I'm thinking of you both. ... View more

When my husband runs into strife, I contact the neuro oncology nurse practitioner. She liaises with the relevant consultant and we're advised of the next step. I'd certainly contact one of your husband's neuro surgical/oncolgy team to advise them of his decline. ... View more