How did it all pan out?? ... View more

Hi, To imagine the hell you have all been through is unimaginable, It will take a lot of time and soul searching to get through this, I wish you and your family the best. I'm sure some how some way your Husband knows your grief and would only want the best for you all and perhaps for you to move forward from here. He would have done the same for you... ... View more

Hi beetlebum100, if you have any concerns, speak with your GP. They can organise further tests, and/or bring your appointment forward if they see fit. Take care ... View more

Hi Wendy, Thank you that really was extremely helpful!! Great idea - group message my close friends. I think that is the best approach, also gives people time to think about their response and remember to say reply to me not to all. I wish you and your husband the very best in his treatment ahead also Wendy and - and on behalf of him, as someone who is being supported by a great partner like yourself, Thank you! Take care Lisa ... View more

Hello there - thought I would join this conversation. I was diagnosed with Stage 3/4 Ovarian Cancer in February this year ... When my baby was 5 mths old. He is now 13 mths and the light of my life - thought we would be finishe ethics journey several months ago but it just keeps going on and on and on. Found out yesterday our frontline treatment is not working and even though I feel fine (apart from being tired) and scans show no visible cancer it is still there. We are swapping treatments so hopefully this will knock it out completely - failure is not an option as far as I am concerned. Luckily our little one has been fabulous - I know what you mean about throwing yourself into them Melanie. We have been very lucky to have such a placid and adaptable child. ... View more

Thank you for the advice, I am going to see a gp today or tomorrow to try and get some answers about the ultrasound. Hopefully knowing a bit more will help me worry less. I appreciate your reply, I'm sorry to hear you've been through so much, I hope things get better for you. Best wishes. ... View more

Thanks so much Tropical, Im just finding that with no experience at all with this kind of situation we are all at sea and quite frankly frightened. We are all desperately trying to do the right thing but its very difficult, they have been together for so long just the thought of losing her husband would be just unimaginable. I guess we thought that we didn't want to rob her of the chance to say her goodbyes at her own pace? Thank you so much for your fantastic advice. Im so sorry to hear about your husband. Losing him at 52, I can't even begin to comprehend the pain and anguish of what what you have all been through. The fact that you have taken the time to sit down and help us when you have been through so much already, has touched me deeply. Thank you Tropical and God Bless ... View more

so sorry tropical... xxx ... View more

Hi there! While my husband did not have gbm, he had a rare cancer of the peritoneum......and you describe our lives exactly. I wanted him to be able to run around with our kids, work, surf, play guitar REALLY LOUD, but cancer robbed him and us of all of these things. Be kind to yourself. Have you looked in to in home family day care? In the last six months of my husband's disease, we had an amazing lady who came and looked after the kids for me two afternoons a week so I could have a break, cook dinner without constant interruption, bath the kids, ride my bike.......and we qualified for special child care benefit, as my husband was unable to care for the children. It is so worth it. Also, the local Palliative support team at the hospital have been so helpful and supportive too. Helpful with medication, treatment options, explaining stuff, a shoulder to cry on that is not the family........ My husband's suffering ended in February this year, and our five year old and seven year old are really hurting.....but we will absolutely get through this....stronger than before and closer than before. Some days are ally hard, and it is five minutes at a time......but other days life runs almost to plan and you have to cherish those moments. Good luck on your journey......I've been there and know where you are at! PA ... View more

Sorry, I can't really help here. Sometimes my husband's left hand works, sometimes it doesn't. When he feels movement fading out, he's generally able to move it back into action. This is an insignificant deficit compared to your husbands. ... View more