Hi Chris, I'm not here often...but I know there are quite a few GBM effected people here (themselves or loved ones). One members husband is 7 years into his GBM journey! Very inspiring... I came here when my wonderful dad had GBM. It was helpful to be around people with similar journeys. For practical advice and emotional support. He had mostly excellent quality of life and lived a very full life till his passing. I can still fondly remember him dive bombing in his friends pool two summers gone. (With his lopsided mohawk hairstyle - a result from radiation) I wish you and your loved ones so many many wonderful times together. with love and blessings Tatsoi ... View more

melanie...how sad 😞 and a beautiful story also my father had gbm also and i was fortunate to be nearby during his death...i sat with him during his last hours and just after he passed away. it was such a special time. what amazing daughters you have! glad you have them and they you look after each other xx ... View more

:_( love him up...and hold him ...I'm so sorry ... ... View more

I'm so sorry to hear your sad news :( Be good to your self and may you be surrounded by others that also love you. (I've really been missing my dad. I was just having a sit down and cry just before reading your message.. I find i need to do that from time to time..sometimes everyday for a while then once and a while.) May your love keep you strong. xxx ... View more

wow...what a thing to face when you are so young. Cancer is scary. With it comes an unknown future...this is huge what you are going through. I don't think there are easy answers or solutions. but getting good support for yourself is essential. Having a counselor or someone like that you feel safe with might help you process some of the big feelings you have. I'm much older than you and recently lost my dad to cancer. We had a marvelous year with him. I too found it so hard sometimes...wanting to curl up and cry but also not wanting to spend my time doing that when I could be with him. It's a fine balance. I remember one day I came to visit when he was half way through his treatment and I said to him ' I feel really sad that this has happened to you, to us. But when I'm with you,I just want to enjoy being with you.' This is such hard stuff, but opening the lines of communication and love can make the unbearable - bearable. Be gentle to yourself...remember that you have a heavy load at the moment. xx ... View more

Hi there, sorry to hear your news. great your husband is positive and you have support from your children. gbm is a tricky bugger. not only is the prognosis not so great...as if that's not enough to deal with...but the treatments and tumours effect on the brain can impact on mood. my dad survived 13 months from his diagnosis. we had an awesome 13months...(mostly) of course it was always at the back of our minds...we knew we most likely didn't have long. crying is good so is laughing i guess my dad was lucky, he also had such great friends around that didn't shy away from his illness. (i hear others aren't so lucky in that regard..it is a hard thing for others to face also) He still kept doing the things he loved til two days before he passed away...still bush walking and gardening. It was certainly not always easy. He had times of being confused and we had some incidents of quite severe dysphasia (him not being able to understand language or speak back...) but thankfully they resolved with upping the dex. I wish you and your family all the possible best. love each other up get good support another great resource and support i found was: [email protected] Dennis Argall who i believe started the group is a wealth of information and a kind and compassionate ear. please keep writing here too...there is always someone who will listen. xx Love to you Tatsoi ... View more

So sorry to hear this news. Your stories have been inspiring ...and your brave man did so well. Another time of change.... Take care of you and your family Xxx ... View more

Hi, You sound like a thoughtful person - it's a delicate balance to stay strong and be real. I think there is much strength in expressing our sadness but also we need to make the most of the moments we have. It can hard not to be overwhelmed...and that's totally OK too diagnosis is very stressful and a shock. Things change ...and you may of heard people talk about the 'new normal' . I had a parent with a brain tumour also. He is no longer suffering , but I did get to have many many great times with him while he was with us. So sorry your mum is unwell. Stay strong and real for yourself and family...this is hard hard stuff Getting support is essential...like you are already doing via this forum Take care Xxx ... View more

Hi amieliza, so sorry about your dad's illness. A cancer diagnosis is scary enough...especially when there are lots of unknowns...like in your dad's situation. there isn't really anything anyone can say that can make things 'better' but this forum and talking to others will hopefully help you feel less alone. Dad's are very special. (well my dad was...and sounds like yours is too!) I maybe know a little about how you feel?... my dad recently died, a little over a year after a primary brain tumour diagnosis. (glioblastoma)He was only 60. of course we knew what is was and were told the grim statistics (survival median 14.6 months...ra ra) but it's a very frightening things when someone you care abouts future is not certain. and hard if your dad is 'keeping things' to himself a bit. I guess it's hard to know what to say or do for everyone in this situation. I really wish you that you can have many wonderful times with your dad... love him up... try to enjoy the time you have, breathe and be with him. and be kind to yourself...this is hard hard stuff!... cry when you need to, get support (counselling is great!) cancer council are really helpful too and this forum too. again so sorry with love tatsoi ... View more