Sorry, I can't really help here. Sometimes my husband's left hand works, sometimes it doesn't. When he feels movement fading out, he's generally able to move it back into action. This is an insignificant deficit compared to your husbands. ... View more

Hi Melanie, Thank you for your response. The results of the PET scan revealed stereotactic radiosurgery would not be the best option for my husband. He'll be going down the Avastin route. ... View more

I had to be really honest with our girls because I suddenly had to leave them at home and jump on a plane. I didn't retun for weeks! My husband worked in Brisbane and had been admitted to hospital after experiencing stroke like symptoms. I had to ensure they understood that even though they needed me - they were in years 11 & 12 - their father needed me more at that time, and I needed to be with him. The youngest one joined us shortly after while the oldest one chose to remain home. We also had a son living in Brisbane. We did lots and lots of crying as a family in those first few days. I'm glad I was so honest in the beginning, because the recent news of progression was met with acceptance of the inevitable as opposed to the abject shock we experienced in the early days. ... View more

Welcome husbandhasGBM. How ridiculous that your husband wasn't considered unwell enough. It's GBM for goodness sake! Could it possibly be that you didn't qualify because you were still working? i never bothered applying but I've thought about it recently because my leave runs out in a couple of months. To be perfectly honest, I'm worried about the wretched forms. I hate completing the salary continuance forms on behalf of my husband. We're trying to live a 'normal' life yet these forms make us list all the problems he's having. Thank goodness my children are older than yours. I can just sit around in my stressed state!! (How much our lives have changed. We used to work long hours and were highly motivated busy, active people. Now, even after all this time, I feel like a wounded animal who needs to retreat to their den.) Our youngest child is boarding as it provides her with stability in her final year at school. Our other daughter finished year 12 last year - we had to desert her for months when my husband was diagnosed. We have no family in Queensland. She's taken a year off and will study at UNE next year. Our 20 year old son is in Brisbane, so we're able to spend time with him when we're in Brisbane. There has to be one positive aspect of this muddle which has become our life. Reading back this post, it seems really negative. I, like everyone else, put on a brave front when I'm out. It's a really sad time though. I'm guessing I'll be a widow in time for our 25th wedding anniversary and my 50th birthday :(. Every tumour IS different, so please don't let my reality bring you down. I wish you and your family all the very best. ... View more

Thank you for your input pdh and Virginia.F. I really appreciate your comments. The question, although posed only a couple of weeks ago, is irrelevant for us now. I will not be returning to work until...... The MRI revealed the presence of multiple sattelite tumours - inoperable. Stereotactic radiosurgery was not feasible, so my husband will begin Avastin. Here's hoping!! ... View more

Dear Trish, I pray for Peace and Strength for you and your family. ... View more

Our time has come to start Avastin. A check with the insurance company confirmed they don't cover the cost. We get the details tomorrow after seeing the oncologist. I hope all you other BT families are travelling as well as can be expected. Cyber Hugs to all. ... View more

That's really sad news. I'm praying for you and your family Minx. ... View more

Hi Minx, It's amazing your husband CAN work. That's fantastic. What a lovely employer your husband has. My husband's employer is great also. As is mine. I can access a 6 month carers payment through our health insurance. Once my leave dries up, we'll apply for that. I have a horrible feeling things are on the move in my husband's head...Looking forward to MRI next week to be proven wrong! Yes, work really is out of the question for me. ... View more