Wow....absolutely lovely.. Greg ... View more

Gday Maureen..Yep..everyone reacts differently to Chemo ( even different types of Chemo) than others. I have been on 3 different Chemo`s, 1 Immunotherapy and had Radiology twice and every one of them has been different in the way of side effects, some minimal, some a bit more extreme. I think the big thing is to try to offset the side effects as soon as they become apparent, and keep Oncologists, nurses etc informed of what may be troubling you.Here in Cairns we fill out a questionnaire everytime we have treatment, and the hospital will follow up with literature (sometimes they even mail it!) I have found that sometimes the side effects can be only short term too. I hope you breeze through your treatment without too many side effects. Greg ... View more

Gday George....I have been travelling this road for 2 years now, and I totally agree with your sentiments.I have only encountered one or two, umm.. not so positive people who work in this sensitive and very demanding vocation.From Oncologists to Nurses, the wide spectrum of professional people you meet,makes you feel secure and informed with their wealth of knowledge. A BIG thank you to you all. Greg ... View more

Gday George..Yes...a lot of different emotions and physical problems (some small hills...others ...a bit harder) all come to the front in this journey.The biggest thing...well maybe Two....keep your sense of humor and a positive outlook. I draw a lot on this forum for others opinions, and find it consoling that many of my feeling are shared by others. I have been lucky with the sleep department whereas the Chemo/Immunotherapy etc have been enough to keep me in a deep slumber, but there have been a few 3 am starts staring at a computer screen! We hope all is going well for you and your journey. Greg & De ps. You can click "add me as a friend" or "send a private message" if you want to, and that way I get emails as well as your posts,so I know when you post.... ... View more

Gday George...Welcome to the group. I have been on here for a while now, and have made a few new friends and learnt a fair bit about this horrid desease.Although many of us suffer from different types of cancer, sometimes the overlapping of emotional and physical needs are beneficial.Dealing with, and keeping a positive attitude, help tolerate daily problems that arise, and the advise shared on side effects etc, are usually great. I`m a 59 year old, who has been on this slippery roller coaster ride for about 18 months now , and am lucky enough to be surrounded by close family and friends that help support me. I hope you find this group friendly and informative, and please, dont hesitate to make contact, even just for a chat.. Greg. ... View more

Gday Totoro..Thanks for your help here...It has been a while since i posted this...and since then have been on 3 different Chemo`s, and an Immunotherapy and about to start my last ditch attempt Chemo, as everything else has failed or knocked the body around too much.With every different Chemo/Immuno there has been different degrees of nausea,and have tried a few now, with Ondanzetron being one of the best (the tablets were for some reason better for me than the wafer..?) Trouble being ,of coarse, you dont get many per packet, so use Pramin,Domperidone, Ginger Tablets, Drinks, tea etc...whatever helps.I`m enjoying a short Chemo holiday at the moments, so the changes in the body are gradually getting back to normal (?).I will start new Chemo in two weeks...so will see what happens when I get onto that..Am hoping this is THE ONE....:-) Greg ... View more

Please feel free to add me as a "Friend"..if you want.. that way i can get emails instead of having to post... Greg & De ... View more

Hi B McD....Have you enquired about Nivolumab? I have been on it for 2 months now and am about to have first ctscans etc.I heard on the news that they are trialing it on brain cancer (Olivia Newton John is helping with this cause....she lost her sister to it two years ago)There are great outcomes coming out about Nivolumab (also marketed as Opdivo)and being immunotherapy the side effects are nowhere near as bad as Chemo. Keep us informed Greg & De ... View more

Hi...I was diagnosed with NSCLC nearly 16 months ago, and ..wow ..its been a ride and a half.My Cancer is stage 4 (cancer in the pelvis) which I have had Radiation,but only mild for pain management.The Chemo I started on was Gem/Carbo which worked well in reducing the tumor (60% over 3 months) but unfortunately knocked the blood cells around too much.Two hospital visits with virus associated with neautropenia, and two blood transfusions, for low red blood cell count.We then tried Alimpta, which was great on the bloods, but didnt kill the Tumor, over 6 months it grew back to nearly the original size.Now i`m on Nivolumab (or Opdivo) which is ammunotherapy.Side effects are minimal and everything was going well until my body rejected the last Transfusion (Allergic Reaction)The Oncologists are working on ideas to try and administer it next week, so I can have CTScan and see whether it is working.I Have heard of others on it and have had good to very good results.During my Journey I have tried, and mostly still using different supplements and dietary changes.Like you I have the "smoothies" and fresh vegies and fruit and also take Wheat Grass Tablets and Astragalis supplements (they were recomended from Oncology Pharmacist).If you need to chat, or just vent just let me know. I hope all is going well Greg & De ... View more