I love this. Big tick to nos. 1,2 and 3. And I thought memory loss was just old/middle age? I wonder if the aliens have a cure? S ... View more

Thanks Sharon. That 5 year mark seems to be the magic number doesn't it. Only 2 and a half to go! I feel for you guys still having to endure treatment. I believe that we don't undergo it, we endure it, but there is an end eventually. S ... View more

Wow Alana. I am so sorry that it came to this. This disease really takes no prisoners does it? I started counselling and it is difficult facing my demons so I am glad that T has agreed that something needs to be done to keep his family together(and possibly to allow him to make sense of what has happened to him and his family)It won't be easy for him but the number one priority in life is your kids. At times they have been the only thing that has stopped me doing something I may have regretted. Lots of hugs. Wish I could do more. S ... View more

I'll have a look. Sounds interesting. On the blood note, does anyone know if we have had cancer whether we can donote again? I used to donote fairly regularly(when they came to school) but was unsure whether the blood bank would like mine anymore. I know I can ring them but just curious if anyone knows. Joanna, I always felt terrified the night before treatment started and so alone. Hang in there. You are an amazing person. S ... View more

Hi Jules,(and Sailor) Just caught up on this. I have 6 monthly bloods next week and even though I am pretty certain I am fine, the niggle is always there. Sailor's shadow lurking in the room. Every time my bowel behaves a little oddly (as it is bound to do) my brain goes into hyperdrive despite having a clean colonoscopy 6 months ago. Even heart burn sends my brain whirring! I hope that the shoulder is fine and that all will be well. To all of us, as the test time approaches take deep breaths and face it squarely in the face. Not much else we can do, is there? Take care everyone, S ... View more

Hi all, I was 50 when diagnosed and thought that I was really young. Since listening to you guys who are so much younger than me to be faced with all of this, I am overwhelmed with your attitudes. I always resisted being called brave by people because I don't think that I was ever brave. I just had chemo because I was afraid. You guys continue to astound me. And yes being a mum is really hard with all of this. I had one doing his HSC and the other was 13. I can't imagine how hard it would have been with a baby. Joanna, never ever feel bad about asking for help. That is one of the positives that this having this disease has given me - a greater openess in accepting help. Hnag in there guys. Samex ... View more

Hi guys, been away for a few days. Jo, I am so pleased that Rob is finished. I hope that the neuropathy wears off soon. Mine actually got worse for a few months particularly in my hnads and rhen s you know, my feet have continued. Apparently this is only a small percentage so Rob could be fine and dandy. Just a quiet word from personal experience. i know that you are well aware from talking to all of us that things may never be the same agian. Keep an open eye and mind that rob may act differently than how you expect. I know that I expected overwheliming joy, but became swamped with fear every few months.I am now finally having counselling as I am bordering on depression. The main problem for me is that I can no longer cope when things don't go according to plan or people let me down. My plan is that things may now continue to improve. in saying this, everyone is different!Rob may have an entirely different perspective to me and grab everything and run with it. I really hope so. Sooo, enjoy the new job and start making those plans for that holiday!!! Samex ... View more

I know that I am being flippant again and I hope that I don't offend anyone. Maybe if the breast cancer people get their well deserved pink show bags, we bum bag people could at least have designer colours?! At the hospital where I had treatment, one of those amazing creatures called oncology nurses, actually went and purchased out of her own pockes some rather stylish ones that could either be slung around the waist or over the shoulder. The unltimate fashion accessory. S ... View more

Hi Teach (et al) Perhaps that is what we learn to cope with. We learn not to demand (or often expect) definitive answers. When people ask me "Will it come back?", of course all I can answer is "Don't know. I hope not." My thoughts go to you with the knowledge that you face this continuing barrage of tests. As we all know, it isn't the tests per se that cause us problems, we are all used to them, but the waiting for the results. Take it easy, S ... View more

Been super busy and only just caught up on this. I am in awe!! The vision and energy that you are exhibiting, Alana, is amazing. What about contacting Quest for Life (Petrea King )as well as Olivea Newton John's place? They may have some idea as to how and where to start. I'm no good on something like this except to add moral support. SAmex ... View more