hahaha re you checking into your room!!! I have talked to my hairdresser friend and she is going to give me a number 2 to allow the hair that did fall out to catch up with the hair that didnt fall out. Cheers for the laugh as i needed it tonight. ... View more

After some thought i have decided that what gets my goat is ... the plight of the country patient ... it is such a long hard road on top of all the other things we have to deal with in being diagnosed with cancer. ... View more

Hiya Lydia I just found a really cool website that sells hats. Pm if you want info, as am not sure if we are allowed to post websites like that in this forum. Julie ... View more

Hi Lydia ... ouch re the wigs being itchy!! That would make life hard. Must admit i even find with hats and beanies that it is difficult to get the right one for the day and am always taking them off somewhere because i am overheating. I find that happens even with cotton ones or bandanas, is sure tough to find something that you can just wear all the time. Now am thinking that is something that could be explored. We need to find a material that breathes and a design that allows for heating and cooling. Hmmmm thinking now!! Ya gotta laugh occasionally!! I have had some funny things happen to me along this journey and have had some good laughs. Even had one of the ocologists laughing one day, which was no mean feat i believe. :) There is a company called sodashi that manufacture moisturisers and all that jazz. They use all natural products and unfortunately are not cheap, however, they make a scalp mask which i have tried and i am wondering if you used that before you put your wig on whether that might help you. I found it very soothing after my last lot of chemo, as i had a quite severe reaction in my scalp with itching etc... Might be worth a try, or if you have a beautician near you that uses the products they may sell you just a sample to try. Or perhaps sodashi themselves would sell you a sample. Julie ... View more

Hi Amanda, I have and do, do reiki on myself although i find its not quite as effective as someone else doing it. I just love it also and am quite convinced it can help people in many situations. That was fantastic that you were able to give your husband reiki. I had a friend visit me in hospital and give me some reiki and it was amazing the amount of heat that came from around where my tumour was. I always find it amazing that i can feel heat from someone in a problem area of theirs. Great to speak to someone else that understands!! Julie ... View more

I just want to send you some hugs while you are on your waiting game. Its the worst feeling in the world and i am sure we can all relate to that!! @ Amanda yayyy re you doing reiki ... i am level 1 and just do it on family and friends mainly. Its the most amazing thing isnt it?? ... View more

Hey Lydia Did you have fun trying on wigs?? I tried some on the other day but they just dont suit me one little bit. It really was quite funny and we all ended up in fits of laughter at how ridiculous they looked on me. I can understand re the hair loss though. Even though i would not class myself as a girlie girl i did look after my long hair lots!!! I would put monthly treatments in it and only coloured it with hairdressers colour and a low bleach one. Ooooh, might be the time to mention my friend has found a hair colour that does not use bleach. If anyone is interested in finding out about this just ask or message me. I do miss my long hair, but i will be interested to see how it comes back as. ... View more

Hiya Miss Reena How you have handled your hair loss is pretty much what i did. I had hair down to the middle of my back and got it cut short and then when it all started to fall out i had the nurses shave it for me. It was upsetting at the time although i am quite ok with it now. Interesting that you should mention about shaving your hair when it started to grow back fuzzy. Mine is just starting to grow back and i looked at it this morning and could see that it will be fuzzy ... my thought was that i would get it shaved again and hopefully get rid of the fizz. Yes, it does get better. :) Julie ... View more

HI Sally and everyone else .. i have just read this forum with tears in my eyes also. I too have been under the "misdiagnosed" umbrella for about 7 months and i went through a stage where i was really angry with the 6 GPs that i saw over that perdiod of time. A long story really but suffice to say i should have been referred on to a specialist a lot earlier than i was and a big lesson for me to be more assertive. Julie ... View more

Hi Lydia ... I am using hats, bandanas and beanies ... i found a shop that sells some great beanies. Somehow i just dont fancy wearing a wig. Julie ps the frustrating bits do get easier and as sharong said we need to take steps forward and sometimes backwards ... so long as we keep moving ... View more