Hi Gail
The side effects sound very similar to those from cetuximab aka erbitux. I was on that for 2 months and the side effects are pretty tough especially the rash. My eyelashes grew, which suprised me no end! My muscles have not been the same since treatment and am convinced that is due to low potassium, which I need to get checked - but currently take potassium and it has helped.
Whether it was worth it or not is only something that you can answer, which is pretty hard to do at the end of any treatment in that the side effects are great at this time. Two years is well done!!
Julie
... View more