Exactly what happened to me, and I finish my 6 week block on Monday. I have coped well but am a little more tired this week. Not enough to change my routines. I had 30 mins downtime each day (no screens, just empty mindedness) and found it useful. I maintained some hobbies to distract myself from negative thinking- gardening, woodworking, a few holes of golf... We will have good days and bad days. Accept it and don't beat yourself up if you feel despondent. Look to do something positive or worthwhile every day. Regards.  ... View more

I sympathise. I have GBM and am finishing 6 weeks of radio-chemo on Monday. I find that I can distract my thinking by following a hobby like woodwork or gardening. We have good days and difficult days. Try to embrace that and go with it a bit. I don't think we should fight it but we can think differently about it. Stay in the game.  ... View more

Hi, Thanks for yr masg. We felt that we could have been prepared more carefully for the bad news, which completely blindsided us. Until the diagnosis, I feel that we were encouraged to be optimistic regarding what they had found, the surgery, and management. Those ideas were smashed when he gave us the news. It wd have been better, I think, if he or someone had sai, 'Well, we have found this, have had a good surgery, but you're not out of the woods yet...this could be a thing like gbm and it is a a very nasty piece of work... I may not be explaining this very well.  That was the very worst moment, when the sense of hope was just stripped away. But right now, I'm good, I guess. I'm in good shape for my age and have good support. Ask me how I am in 4 wks time! It might be a different story, but maybe not.  You? How are you travelling? R ... View more

Hi Kimberley, I was so sorry to read this. First, for your loss, and second because I received my very poor prognosis a couple of weeks ago. I am 66 yrs old and have never been in better shape, played golf 3 days a week and was loving retirement. Then I had some balance issues and a dramatic mood shift. Surgery within days and my life has been inverted. I start chemo/radio next week. Thank you for reaching out. I have joined this group to share my experiences and to learn from others. Let me send you my very best wishes. Rob ... View more

🤣 I wish!  Surgery was fine and I was told very successful. When the numbers came back from biopsies, 'very successful' became something else. It's a pity it happened like that.  Anyway, I feel fit and able, basically. How are you tracking? ... View more

Thanks. I do have plenty of support and am grateful for your prayers, also. Rob ... View more