So sorry you and hubby are going through this Marley It sounds like the combined treatments are taking a lot out of him Any time you want to share and vent how your feeling come on this site and say what you need to as we are all going through similar  journeys Jude11 ... View more

Hello lovely lady sorry I didnt get back  to you in hospital and then shut myself down and didnt look  at this site for weeks. Only just logged in again tonight. I hope you are still alive which would be a ridiculous thing to say to someone except on a site like this. On november 28 it will be legal in the sate of NSW to be assessed for strict criteria to obtain a drug from a doctor qualified in VAD (voluntary assisted dying) to end your life. It is legal in other states but NSW must be less progressive and people  with aggressive inoperable disease will be able to die with  dignity at the time of their choosing Website(dying with dignity NSW) a charity based organisation in sydney who have campaigned to parliament for years to bring in VAD in NSW. director is Shayne Higson I also find it difficult to trust sharing my own cancer journey as Im in a prolife highly Conservative rural area where any mention of  dying with dignity and the law change in 6 weeks sees the cancer patient being scrutinised bullied and accused of not being of sound mind   I've  had my mind  soundness examined 3 times since diagnosis and being a retired ICU nurse with nearly 50 years of practise behind me I reached the conclusion that I understand too much about the  disease process and my thinking is too rational so I'm seen as a difficult patient Once again sorry didnt see your post happy to continue story sharing and will check the site regularly Jude 11  ... View more

Hey there Mike feel for you mate had a large bore bladder irrigation catheter hanging out for 10 days they are not pleasant but you need to ask about other alternatives so you know if you've got any other choices as well or make friends with the catheter if they can keep the same one in place it will cease to be uncomfortable after a few days and you'll know its probably going to save your life you should google bcg effectiveness and side effects as well mate ... View more