Oh my gosh Richard! noooo!!😲 As if you don't have enough problems, and now this?? I'm so, so sorry.   If this is not going to go away, I guess you'll have to learn to treat the side affects, like the eye drops and mouth spray, also my chemo nurses recommended for me to gargle with a teaspoon of baking soda in a small amount of water, just swill it around mouth and it helps.   Also moisturiser on your skin, sorbaline would do but there is a product galled MOOGOO, made by a concerned mother to treat her child from rashes ect. and now there are quite a few of her products in chemists and priceline that are marvelous and really work.   Don't think of other stuff going wrong until and IF they do, then treat that problem.   This absolutely sux for you and seems terribly unfair, but that's life isn't it.☹️   I'm also so sorry you can't sleep, that's not helping.   I worry about that too as I used to like to wear myself out with exercise to ensure I'd sleep better, wish you could do this too, but one day you will?   Also this may sound weird but sometimes acupuncture can help and meditation classes?  I swear by acupuncture as long as you can find someone who KNOWS what they're doing ( but stay clear of Chinese herbal medicine, can be toxic)   You have to get your bladder cancer sorted out then you may get back your energy to exercise, keep striving for that, I can't wait till you get started on treatment.   If you ever need to chat, private message me, & I'll give you my number,  I really feel for you, but so glad you have such a caring partner, sending you big cuddles, Cindi xxxx   ... View more

Hi Greg, How are you feeling, haven't heard from you for a while, hope that means you're out and about feeling a bit better? Thinking of you, Cindi xx ... View more

Hi Richard, I was thinking of you and hope you're going OK? I'm better than I was, it's always for the week after chemo I am shattered, feel like I've been hit by a truck, but now can get out and about, just a bit light headed and tired. Hope you're coping ok. Cindi xx ... View more

Also @Jennifer66 , you are a good support to many on here, your kindness shows 😘 ... View more

Hi @Jennifer66 , I'm so glad you have a wonderful supportive husband, I also do I guess, he really tries but doesn't understand that much, and isn't around much, but I sure appreciate him when he is 😊 Got to be grateful for something. xx ... View more

Hi @Jennifer66 , Thank you so much for such kind words and yes I agree with you about how no one really knows what we are going through unless they've been there,I also get the " how good I look" which is so opposite to how I feel, but I guess people just don't know what to say, some seem to retreat from me and keep away probably because they don't know how to handle it ( like my sister😞, she has really distanced herself from me) but surprisingly a good friend of hers has cancer and we have become close. Sad but everyone's different. Good luck with your results, xxxx   ... View more

Hi @YelenaVSH , How are you going? I wondered if there's any update on your diagnosis? I know sometimes it all goes SO SLOWLY which is so frustrating, but I hope you may know a little more by now? Thinking of you, Cindi 😘 ... View more

Hi @Jennifer66 , I'm so glad your Professor is so wonderful, are you going to trust in his suggestions? It is very hard but holding onto your life may be more important than retaining your bladder? If that IS the best decision to give you the best chance.   Oh Jenny, I don't know, but please listen to your Prof, he will know the best decision?   Glad you're not being negative, it's all so hard, wish you were in Sydney, maybe we could have met up sometime for moral support, although since my last chemo last Thursday I've had no energy at all and find it hard to do anything let alone drive anywhere, I'm so spun out and dizzy all the time. But I'll keep going, hoping each day that tomorrow's better.   NEVER give up!!😘 xx ... View more

Hi @Richard56 , I'm so happy for you that you have a plan sorted, sounds good. You can actually buy stuff from chemist for dry mouth , a spray I think that helps, you should ask at a chemists? maybe? Talk soon, I'm tired today so going for a nap but side affects not too bad. all the best, Cindi x ... View more

Hi @Jennifer66 , Oh I'm sorry, you sure are getting kicked around but your specialist sounds wonderful, sounds like he's doing everything possible for you. I so hope this new treatment shows some promise, you need some luck. I don't know really if they know if any cancer sells too small to see have entered my bladder, or other places, but hope my chemo treatment kills any. I'll find out in a couple of months when I have one of those cyctoscopy I think it's called where doc checks out the bladder? and ct scan. Then if things looking good I'll follow up with ct scans every few months then 6 monthly to see if it returns as mine was a very aggressive tumor. But who knows? it sure is a waiting game isn't it. Lets try to be positive. I feel for you Jennifer. Which state are you in? xx😘 ... View more