Hello Marg Nice to hear from You.. My appointment was ok. As my pain had really settled to quite minimal and my energy levels have been fairly good and no raging infection they said they will treat those who are in agony and see me in 3mths... I was kind of relieved. Even though my face has sunk from under my ear to half way to my chin it has just sunk there's no definitive jaw line.. They said it will be the neucrosis.. Today I was putting some numbing gel in my mouth and what I thought was painful from perhaps my teeth hitting it as my bitebis out of alignment turned out to be somthing very hard spikey like bone but it is in my cheek.inside my mouth but on my cheek side..mystery ???? Thank you for asking  how have you been?? ... View more

Hello Again    Hey I'm wondering, did they take out your nerve when they did that free flap?? And did that leave you completely numb ? Or is there phantom tingling?? Or ??,   And how are you travelling?? Have you been okay?? I hope so.. Hope you have a comfortable sleep tonight.. Thanks 👊  Stella  ... View more

Gotta love their sense of urgency.. We are very fortunate to have a great medical system here in Australia.. Take care Stella ... View more

Hi Hope your feeling ok. My sister had a astrocytoma as big as a man's fist left temporal lobr.. They radiated the heck out of it it shrunk to residual spots for 16years the grew into a gliobladtoma and we had another 3 years.. I will be forever grateful for that kick in the guts the radiation can do did do.. Make hay while the sun shines. Yours Sincerely Stella  ... View more

And it's now 2025 ,I hope your doing OK with less down days .. I admire your courage.. Put up an update if your up to it.. Take care Kind regards Stella  ... View more

Dear Octavia   So sorry to hear Your Mum has a Gliobastoma🥺 That alone is huge and all of what comes with is definitely enough to send a person into shock  and other adverse reactions . Maybe your symptoms have eased in the last few days,I hope so.. Try not to worry about things in the future I know there is practical things we must take of but as far as possible just spend time with Mum xxxx   ... View more

Hi @Stell87,    Thanks for reaching out to the forum and such a good question to ask of others that may have been through a similar surgery. I can imagine it is a lot to get your head around. We have a program that connects you with a volunteer in the community who may have had a similar surgery or treatment to you. It is called our "Connect Program".    If you would like to learn more about the program and connect with a volunteer please call Cancer Council on 13 11 20.    Take Care, Felicity Cancer Council Online Moderator  ... View more