I don't think I should say that I know how you feel but I have a similar experience. It's not about losing someone but more on the experience of seeing someone suffer or being helpless in some situation outside your control. The only suggestion I have is finding someone you can talk to about this. I know it's not easy to find from what you said. Is there EAP at your work or counselling service some where you can go to? I think your GP can also give you a referral to see someone qualified. My understanding is social workers at the hospitals can also help. ... View more

Hi Carolien, I'm so sorry for your loss, you have my deepest sympathy. How are you holding up? I just can't believe how it could happen so quick like this. We were talking about treatment options only a couple of months ago. Now I'm getting nervous about my partner :-S Take care ... View more

Hi Rain 76, Who did you deal with about the Avastin trial and how long ago was that? We only looked into the Avastin trial in March which is just after they closed the recruitment. The quote is from our oncologist. Unfortunately, the trial has to stop due to a scan result on Tuesday which doesn't look good for the new tumour which grows bigger while the original one stays the same. I don't know how they decide that we should stop the trial. I feel quite grateful in a way to know that after 10 months my partner is still doing considerably well. I also agree with Summer Fun that it's great to talk to people here. I deal with this situation by talking to my partner, my best friend and my boss. I find talking about it seems to help me get it out of my system. ... View more

Hi Rain 76, My partner was diagnosed in August last year, similar time as your husband. Where are you located? Have you explored other options? I believe your husband had Temodar/Temozolomide so far. There are other chemo as well. One of my partner's doctors recommended Carboplatin and Etoposide after Temodar failed him. Avastin is also an option if you can afford. It is ridiculously expensive. There are also some clinical trials. My partner's tumour regrew in March. I seek second opinion and now my partner is doing a clinical trial. If you don't live too far away, you can also get cabcharges to go to the hospital. ... View more

Hi Michelle, I think medication like Dexamethasone can change people a bit. The way the person deals with having terminal illness can be the cause of problem as well, I believe. My partner doesn't seem to hold back his thought at all. When he isn't happy with someone, he tells them off right away. Things can get worse when the other party becomes nasty as well. *SIGH* As for your question about chemo.... why? Well, the tumour can grow bigger as with my partner. His scan in January (5 mths after surgery) was good. Then, out of no where in March the tumour was back. I read from some where that the tumour can double it size in 2 weeks. Can the tumour spread? I haven't done much research on this but again with my partner, the scan he had 4 weeks ago shows a new spot around 7mm in different part of his brain. We just had another scan this morning so will know more soon. ... View more

Thank you for your support, I appreciate it. My partner has gotten better in the last couple of days. His speech is still not 100% but has been improved by a fair bit. The doctor bumped up his Dex early last week and finally the drug appears to do the job! We had MRI scan this morning; hopefully, his doctor will be able to tell us something tomorrow morning. Fingers crossed! I don't ask much, just being able to continue on with his current treatment. I'm not ready to look for another treatment as yet. xo ... View more

Interesting, you get to read reports from the scans. We've never received any report. Every time after the scan, we will see the oncologist a couple of days later and he will show us the scan and tell us how we travel along. ... View more

I don't think it's a seizure as he's still had speaking difficulties until now. The doctor said not much we could do. He has increased the dose of dex and hope for the best. ... View more