Hi Geoff, Hope you had a good christmas & new Year.We are off back to Perth next week for the next round of MRI and Drs appointments,so maybe know more then, I am feeling too well for there to be too much problems I think ,at least I hope so.Still sleep lots, I find what ever I do I need to allow the same amount of time for recovery after.61 days till we go cruising! Bring it on! Bst wishes to you both and hope this year is a good one for all of us on this forum. Cheers and hugs Sue ... View more

Hi Geoff, We are now booked in on a round Australia cruise starting in March. I have just finished all the Radiation and the first round of chemo. The next lot of Chemo will start end of december. I can relate to both of Lorraines problems of constipation which we seem to have well under control now with coloxel & senna tablets every day and also the flatulence which nobody else has mentioned in other posts but I am finding can be a problem.Going for walks can be a help and gets you out of the closed in enviroment.Due for the next MRI just before Christmas so wont know whats happenning till then although the Dr says this one wont tell him much of what is going on as everything has to settle down after the radiation therepy, so the next on will tell us more. I find out more imformation from the forums than I get from any of the Drs! I hope everything goes well for you. Cheers & hugs Sue ... View more

Hi Dee, Sorry to hear your diagnosis, that sucks. It takes a lot to get your head around the thought of dying, I think the worst is worrying about those we love and have to leave behind. I have spent a lot of time thinking and talking about this and now find myself in a good space especially now I know the details of what will happen at the end with a GBM lvl4, once I was reasured I would be keep pain free and that it would be quick I found I could deal with it much better and also my faith has helps lots too.Good luck with you, I will be thinking of you. Cheers Sue ... View more

Hi Guys, Thanks for our interesting & funny posts, I am suffering from chemo brain too, I can only do things first thing in the morning before I lose it, I normally do a fine embroidery called Hardanger and I am making such a mess of my current piece I could cry.At least I can still knit in the afternoons. I have shaved my head too as they shaved half of it when they took out the brain tumour, my daughter shaved hers with me and raised a heap of money for the RFDS as we have used them twice this year. Sadley as it is regrowing it is all grey so when it has some lenght I will be a grey old lady at 54. ... View more

Hi Geoff, Thanks for all the imformation,as I am still just starting on this long road it helps to hear other peoples versions as the Dr dont really tell you enough. We are also planning a trip, but as the Dr says no flying we are going cruising instead.Just have to try to be chemo free for the month the cruise will take.Will talk to my Oncologist about QOL quality of life, which to me is very important when you dont know how long you have.Please keep posting and good luck and happy travelling to you and Lorraine. Cheers Sue (postiesgirl) ... View more