Hi, i am so sorry that the drs have let you and your family down.
On 26 aug 2011 i discovered a lump on my neck at the front, first word "cancer" sprung into our mind. we were away for the weekend and so we decided to try and not stress as i couldn't see my gp till the sunday night. on going to see her she metnioned something to do with the thyroid, so off i went for a ultrasound to discover a 5cm multinodular goitre pressing on my trachea.(this making it feel like i was being choked 24/7). i was sent for blood tests which came back clear,and a radioactive xray to check for thyroid being active or not active, which it was not. I was then reffered to a specialist, and while waiting for an appointment i was told i could be waiting a while and that i i was sick to go to the ed. i told the recepionist i would not be doing that as i was not sick, just couldn't breath very well. I wrote a letter to head of endocrinology department of the hospital i was reffered to and i had an appointment within the week :-)
he then sent me straight to the endocirne surgeon that afternoon as that was the only way to take the pressure off my trachea, as well as ordering ASAP a fine needle biopsi to check for cancer.
I saw the specialist who then straightaway put me straight through to the surgeon, who told me that there would be a 90 day wait due to public health system however she said that if i got worse then i was to ring her back and she would get me back for reassestment. 2 weeks later i was back seeing her and the ear nose throat surgeon and the following week i was in having the surgery done. right side thyroid removed and lump which turned out to be follicular thyroid cancer 😞 this was devestating news as the biopsi came back clear, and i was told that there was a 80% chance of it not being cancer and 20% it could be, but wouldn't know until the lump was taken. This was just before xmas, i then had to have second round of surgery as a precautionary measure to have the rest of my thyroid out, the left side. my lovely surgeon has been really great and told me that we were so lucky i came back to her. I am now on thyroid medication for the rest of my life and am currently waiting on a date for my radioactive iodine treatment which will blast any thyroid cells.
anyway my thoughts are with you guys and i hope that you can fight this.
take care
Lynne xx
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