March 2009
Hi I to have survived it is now 3 years since my last treatment of both radio and chemo I must so I feel so much better than this time last year. I am still struggling with eating are ver restricted in what I can manage to eat but I try not to stop me from having a "social life" I have joined to 2 support groups which meet regularly and I have made some good friends from these people. When I moved here I had just completed treatment,left my job,sold my house and prior to that I had lost my husband to cancer13 months before. The only contact I had was my daughter who lives 20 kms away with her family. I also have joined other groups which seems to fill my time in. The only thing I find is that because I have lost so much weight people seem to think I am helpless and insist on trying to help me and I am determined I become independent. I must admit some days I get rather down and think "why me" so then I put the lead on the dog and go for a short walk or drive down to the river and watch the water. I find this helps me settle and I am seriously thinking of taking up fishing. I have just one question to ask (has anyone any tips or advice for the dry mouth and if there is and chance it will improve) my GP is very negative about this and my ENT DR seems more interested i if there is any sign of cancer. By the way my cancer was on my left tonsil and would you beleive I still have my tonsils try explaining this to people who don't understand Kind rgards to all
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March 2009
I am only new to this but read with interest your not knowing what to do about your work. I was in a similar position 3 years ago my situation was compounded by the fact that my husband has died at home of a brain tumor 15 months prior. I tried to go back to work at first part time and then full time I was just not coping so I made an instant decision tho put my house on the market and resign from my job of 23 years. The house was sold in 2 days and I went straight on annual week so my resigination could take effect. I packed up and moved to be closer to my daughter and since then I have never looked back. Made lots of new friends and have different interest I feel I am getting on with my live but still tend to live from day to day. Has anyone else felt like this. I suppose it is always in the back of your mind that things can charge at anytime. I feel that after I put my resigination in a few were pleased (for selfish reasons) but I am sure it was the right choice for me. Take care Jenny
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March 2009
Interested in your idea of keeping a diary on what you drink. I can't handle fizzy drink so have to stick to fruit juice or cordial anything acholic is deadly and only makes my mouth drier. I have tried different types of mouth sprays, I also have noticed if I have some dairy products I tend to form excess mucas in my mouth ^ throat. Anyone else had this problem. regards to all jenny
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March 2009
I completed my theraphy in july 2005 and am still having s very dry mouth at its worst when I wake up. I amfinally starting to put on weight but I am supplementing my food with ensure I blend a lot o things but seem to have trouble with texture so I am getting very good at sucking things mainly to get the flavour. I drink as much water as is possible. somedays I feel very down and then I try to get myself out of the house even if it is to take the dog for w a walk. I live on my wn with my dog (sam) and having to get my own meals I find this creates a problem. If there are tips or suggestions I would be most grateful. Take care Jenny
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March 2009
I am still suffering from the side effect of radiotheraphy mainly a very dry mouth and some difficulty in swallowing and chocking on some foods and drinks. Any advice abou this
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March 2009
You mentioned a retreat your wife attended could you please let me have more information as I feel I need advice on eating etc. Regards jenny
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March 2009
thanks for the information as I said I am still fing my way around the sites. Do you know anywhere I can get information on what to do for a very dry mouth. I have just started to put weight on and hope to get my teeth sorted out soon. I would give anything to be able to have a piece of bread and meat with coughing and chocking. Hope you are keeping well I am off to the Doctors tomorrow and hope I will get a good report. I have joined a support group in Port Macquarie and have made come very good caring friends. We are having Xmas in July luch this week should be fun. Take care Jenny
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March 2009
I was reading message about Port Macquarie. I attent a support group which meets very Thursday at the Rotary Lodge most of the people who attend are having treatment but there are few who have had treatment at other centres. My treatment was at the Mater in Newcastle but I have settled in the PM area. I find thish group very helpful and have made some very nice friends. Regards jenny
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March 2009
Any suggestions in ideas to gain weight when you are restricted in what you can manage to swallow and when living on your own and find it a real problem preparing cooking having eat on your own and then not being able to eat. Also does anyone else buy food thinking it looks nice then ending up throwing it out I must have put at least $100.00 wprth of food out this month. Most of it untouched. Any thoughts or ideas would be most welcome Jenny
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March 2009
i have just discovered this site and having been reading through I come under the Head & Neck section byt I am unsure what to do to suscribe I am still feeling my way around the computer and would be greatful for any tips to use this site properly. Jenny
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