Hi Sandra Am so sorry to hear your news I can only imagine the different emotions you all must be going through and am praying that the chemo keeps things stable for longer. Next week this time we will have our results the waiting has been terrible and I can't wait to know either way. Like you I am just greatful that to date Rich hasn't had to endure to many disability's and mainly he is living a good life. Please stay in touch and know that you are all in my thoughts and prayers. Luv Kim ... View more

In my thoughts and prayers xoxo ... View more

Hi Carolien I havent' been on the site for sometime but you have been in my thoughts and I was just wanting to check in to see how you are doing and how you are coping on your own and adjusting to life. xoxo ... View more

Hi Femme/Rarsie I totally agree with you about the postive outlook and boy are we working hard on that and reading about your daughter does give us hope and something to hang onto. Lots of prayers going out for everyone's MRI's to come back positive again. You are so lucky to get your results the same day the waiting makes it worse but on the other hand not much we can do about it, just have to keep the mind focused on the good things. Sandra please post how things go for you on Friday, I thinking of you all xoxo ... View more

Hi Lorraine So sorry to hear things are getting worse for you I think of you often and was wondering when you will next be down in Perth if I could come meet up with you. The black motions is definitely old blood which can be from an ulcer normally higher up in the intestine. God GMB is bad enough without any other cancer coming into the picture. How is he holding up with all the changes that are happening or is he not aware of the accidents etc. I was talking to my sister the other day and she turned around to me and said I feel for you, you have been in hell for nearly a year Rich had his seizure August last year. I sat there for a bit and said that I also thought I had been in hell for a long time but the longer this is going on the more I am realising I haven't even seen hell yet. I can so understand the panic you must be feeling cause I feel it and in all honesty Richard is doing great and apart from sleeping more etc he is brilliant. Lorraine just remember to take everything one day at a time and when that gets to hard one hour a time. I hope with the Doc returing tomorrow you get some help and direction as to what is happening. Am so glad you have been in contact with Carolien I think until someone has been through what we are all going through no one can totally understand and she has been there and has found the resources to share which are specific to GMB it is soo good to have the support amongst us, please know if there is anything I can do to help you jusst have to ask. I haven't been on the site for ages I am in my last year at uni and have just had a month of full time prac plus I have had my job so basically have been working 6/7 days a week. Last week I decided I need to get my life in order and I need to take control of the things I can control what a mistake that was I went on a decluttering mission which turned out to be a very emotional journey and has left me empty, which is a feeling which is beginning to feel normal to me. (Sorry am rambling) Rich has another MRI on Frid but we only see oncologist on 16th for the results. Let me know what the Doc advises etc and if you do have to come down this way please let me know. Thoughts and prayers are with you both, speak soon Luv Kim xoxo ... View more

Hi Lorraine So sorry to hear things are getting worse for you I think of you often and was wondering when you will next be down in Perth if I could come meet up with you. The black motions is definitely old blood which can be from an ulcer normally higher up in the intestine. God GMB is bad enough without any other cancer coming into the picture. How is he holding up with all the changes that are happening or is he not aware of the accidents etc. I was talking to my sister the other day and she turned around to me and said I feel for you, you have been in hell for nearly a year Rich had his seizure August last year. I sat there for a bit and said that I also thought I had been in hell for a long time but the longer this is going on the more I am realising I haven't even seen hell yet. I can so understand the panic you must be feeling cause I feel it and in all honesty Richard is doing great and apart from sleeping more etc he is brilliant. Lorraine just remember to take everything one day at a time and when that gets to hard one hour a time. I hope with the Doc returing tomorrow you get some help and direction as to what is happening. Am so glad you have been in contact with Carolien I think until someone has been through what we are all going through no one can totally understand and she has been there and has found the resources to share which are specific to GMB it is soo good to have the support amongst us, please know if there is anything I can do to help you jusst have to ask. I haven't been on the site for ages I am in my last year at uni and have just had a month of full time prac plus I have had my job so basically have been working 6/7 days a week. Last week I decided I need to get my life in order and I need to take control of the things I can control what a mistake that was I went on a decluttering mission which turned out to be a very emotional journey and has left me empty, which is a feeling which is beginning to feel normal to me. (Sorry am rambling) Rich has another MRI on Frid but we only see oncologist on 16th for the results. Let me know what the Doc advises etc and if you do have to come down this way please let me know. Thoughts and prayers are with you both, speak soon Luv Kim xoxo ... View more

Hi Rasie Sorry I haven't been on for a while but have been flat out with work etc.. Have just spent the last week trying to get the house in order been on somewhat an emotional journey decluttering. Rich is doing really well we have another MRI on Friday so needless to say the nerves are beginning to kick in but we only see the oncologist on the 16th for the results. I have moments where I think they have it wrong and that we are in a bad movie then he goes and does something to make me realise its not a movie... How is your son going hope all is well and that his MRI came back clear. Take care speak soon xoxo ... View more

Hi Carolien Sincere condolences to you and your family, my heart goes out to you all and will be sending you extra prayers on the 13th. The only good thing to hold on to is your hubby is no longer in any pain... May he rest in peace xoxo Hi Rain Hope your hubby is keeping well and you have had no more set backs,you are at present living through my fear and I pray when the time comes I will have the same strength as you.. To everyone else I hope you and your loved ones are all keeping well and you get moments to smell the roses!! My hubby is at this stage doing really well he starts on his next round of 5/23 the week after next. I am dreading our next MRI as his last one showed a little nodule (which may be the after effects of the radiation) I read a good quote on another site for GBM which was "Don't go there... till you have to!!" so I am trying to live my life with that mantra!! I ask for love and healing to be sent to each and everyone of us who are facing this and that we receive the strength to cope with what comes our way... Take care xoxox ... View more

Hi Cathy My hubby was only diagnosed in Feb with a GBM grade 4, he finished his chemo/radiation last month and is due to start his first round of 5/23 chemo next week. We are having our post radiation MRI tomorrow see the oncologist etc later in the week, so very nervous at the moment. I agree with Terese you are very young and it must be tough for you, I think my hubby is too young to have this and he is 48. However, I have met another woman on here who has a 28yr old son with GBM. I also found a very good site on facebook of a young woman who is a 12 yr survivor which is so inspirational. Feel free to write anytime Take care Hammy ... View more

Thanks Peanutz, we have the post radiation mri and see oncologist and radiologist in the next week then we start on our first round of 5/23 tmz so needless to say that we are praying for positive results from the MRI. This is such a scarey roller coaster ride we are all on, I wouldn't wish this on my worst enemy!! What is the trial your partner is going on to? xoxo ... View more