Hello, I also have papillary thyroid cancer. I just turned 23. I was diagnosed when I was 18 and had surgery and RAI, was told I was extremely low risk for recurrence. So I wasn't even that worried when I asked my GP to check a swollen lymph node I found in my neck last September... but it turns out it has spread to my lymph nodes, even my specialist was shocked. I had a neck dissection almost 3 months ago which I was told would be similar to my initial thyroidectomy... but that definitely wasn't the case!! Still really struggling with day to day activities and have only just been able to go back to work full-time. I'm having a whole body scan next week to see whether I need more RAI. I have found another lymph node on the other side of my neck that's been swollen for more than a month, no idea whether I'm being completely paranoid or if it's back AGAIN. Will have to wait and see.
My prognosis is still excellent, and I know most cancer patients have it a lot worse, but it's tough to go through. I know doctors mean well when they tell you it's the "best" cancer to have, but that's sort of like debating which is the "best" animal poo to eat 😉
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