September 2012
I have reached the time where Iam between radiotherapy and surgery. I am resting as well as I can until the next lot of MRI and pet scans to see if the tumour has shrunk. Then there is surgery. I spent over a week in hospital during the last week of radiotherapy. My body had a bad reaction to the chemotherapy and I was very ill. Now I am slowly improving and off the strong pain killers. My main problem is unbelievable fatigue.How does one cope during this time .? Sometimes it gets very hard to keep on being positive and I can hear myself getting a bit whingey .
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August 2012
How quickly time flies. And how quickly chapter two is being written...' radiotherapy and chemo' The Peter mac clinic is so familiar now with so many faces easily remembered. I take a small cushion in with me to kneel on when I get on the 'bed' of the rt machine. It helps my poor old bony knees.
Each day Monday to Friday
Smiling staff
The crumpled appointment forms
My bag with books and sketching materials
The waiting rooms...murmurs and low conservations, the hypnotic drone of sports commentary from the television
Well thumbed who and women's weekly magazine in haphazard piles
The walk down a narrow corridor to radiotherapy
Th e antiseptic smell and crackle of paper as my face falls onto the head piece of the rt bed
Cool hands hover and push,pull my back into position
The strange science fiction noises of the machine
The strangely comfortable position that I so inelegantly rise from, clutching chemo bottle and pulling at clothing
the walk out into fresh air and sunshine.....
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August 2012
I am almost one week into my treatment. I was so nervous beforehand but now am feeling much more relaxed about the process. I have had a picc line inserted through a vein into my upper arm and wear a chemo bottle around my neck. The site of the tube entry is still very tender but each day sees improvement. I'm still getting tangled up with tubes and sleeves and buttons when I change clothes....does any one have some handy hints for this and also showering...which seems to take forever!
I'm also going to hospital Monday to Friday for radiotherapy. Already some faces are becoming familiar. My wonderful family and dear friends are coming to the rescue with lifts to and fro. I take a bright pink cushion with me to kneel on when I climb onto the treatment bed....it's so hard on bony old knees. Yay ! Last treatment for the week and the weekend beckons.
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July 2012
Thankyou so much all of you. I saw the nurse re chemo education on friday in preparation for Monday. I'm starting to feel nervous right now which I know is very counterproductive! It is so strange to think how 'normal' life was a few months ago. This is now my new normal!
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July 2012
Mondayis the day I finally start radiotherapy and chemotherapy. seems to be a strange thing to want to happen but I was beginning to think I would remain forever in the limbo land of diagnoses scans and appointments . In the past two months or so each time a doctor or surgeon told me some thing new and seemingly worse my reaction was of a massive shock. It seems amazing how quickly one accepts this and tries to move on. Im finding real comfort in reading the stories in cancer connections. What a brave lot !!!
My family and friends are rallying with offers of lifts to hospital . I'm a bit nervous about the radiotherapy effects but have already received good advice re the use of aloe Vera on burnt skin. meanwhile I am in some pain and there is a lot of bleeding. Can't wait for these symptoms to go !
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July 2012
I am so very new to all of this and not even started treatment. . It is wonderful to know that there really is support from people who are going through or have been through all the trials and tribulations of a cancer diagnosis. Ron and silly and Pamela...thank you for your response...I reread them when ever I'm feeling a bit blue. I'm trying to be positive and cancer connections is becoming a lifeline for me.
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Tuesday was not a good day. I met with the surgeon who will operate on the liver met . It took a while for me to realise that he was talking about a 40 % survival rate in five years for this secondary cancer.i just cannot believe this is happening to me. I kept this news to myself but told my husband the next day which gave me some ease.how does one cope with the enormity of this..?
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