After 8 wonderful years of remission from Stage 4 Follicular Lymphoma, within 3 weeks I had gone from being care-free, cycling to work, cycling around, feeling good, to hearing the news that first that a CT scan - whilst I was waiting for biopsy results - showed that I had a cricket-ball sized tumour in my abdomen. Then the biopsy came back positive for not follicular lymphoma, but DLBCL. PET scan confirmed a 18cm tumour, plus little tumours in the groin and arm pits.   Then the biopsy was double checked, and it came back a week later as Double Hit Lymphoma (MYC+BCL2)   I'm currently in day 11 of round 1 of R-EPOCH, and I'm knackered (from the chemo). No nausea really, but just having no energy at all. Up to a month ago, I was cycling 500-600km  a week.   Still somewhat in shock. And I'm worried about the long term prognosis (I'm 47).   ... View more

If so, I'll see you there. Go Dons! ... View more

In remission from Non-Hodgkin's Lymphoma - Any other patients out there? ... View more

When's survival survival? I was diag'ed with follicular lymphoma stage IV in April last year, and underwent 6 months of chemo in a medical trial (BRIGHT study). Whilst I'm in full remission right now (and was half way thru the chemo!), I'm still part of the study, and will be for another 4.5 years. I'm being checked up on every 3 months right now. If I can't ever now give blood, that would seem to suggest there's a risk the cancer could come back, and it could end up being the end of me. Naturally my oncologist isn't changing the initial prognosis (According to FLIPI, 75% chance of making it thru 5 years, and 51% chance of making it thru 10). Officially the cancer is "incurable" (I guess since it's a blood-related cancer which circulates throughout the body), so can I call myself a survivor a) now, b) in 4.5 years, c) at 10 years, d) never ? Cheers, Chris ... View more