Thanks for your well wisses Ron. The support site i was given to me at the cancer centre is... http://www.leukaemia.org.au/web/index.php
The specialist also told us the brain is the only part it doesn't affect.I hope she's right.
Good to hear you don't have it,what was your eventual diagnosis?
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They still don't know what is wrong with my kidneys Sharon. I lose up to three gramms a day of protein thru my urine. I have had three kidney biopsies now and they all show problems with my kidneys but nothing that relates to the known kidney diseases. My rheumatologist and nephrologist both believe it is from chemo I had 14 years ago. They enhanced it with stuff called levamisole. It is a vet drug used to kill parasites in cattle and sheep. My rheumatologist is an ex oncologist and he is quite scathing on its use on people. The only drug that has helped my kidneys is methotrexate and that stopped working after a couple of years. My nephrologist and rheumatologist both want me to try humira and my neprologist has suggested cyclosporin,cyclophosphomide and imuran. I'm not going there ,I have had it with poisons.I do a 24 hr urine collection every three mos to monitor things. It has stayed static for a couple of years but I have had peripheral neuropathy for several years and it is getting worse. I have just been dxed with type two diabetes. It is starting to look like cancer was the least of my worries . Hugs to you and your husband I hope something turns up soon to help you,Ron.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.