hi, I just wanted to say thank you for your post. My partner of almost twenty years passed away from the exact same thing as your partner four days ago.  Sadly, we only had two months together, I cared for him at home, was his only support and caregiver and never will regret taking care of him. I told him when he first had the emergency surgery on april 21st that I am on a leave of absence from work and I am his servant all his days. I gave him my life, I cared for him and was his partner, caregiver and spiritual guide to help him ease into the next life. These last couple months brought us closer than ever and I received more than I could ever give. The gift of His last months, weeks, days, hours, minute and finally as I held him close to my heart, weaping, his last breath. When he passed my heart broke, my soul ached because a part of it I have him so he wouldn't go on his new journey alone, my final act of love. Thank you for letting me know that someday a smile will return to my face. I loved him so. ... View more

Great big hugs to you. ... View more

HI Storm, Hope you are doing ok. The first anniversary has come and gone. The actual day wasn't too bad I had lunch with Kevin's sister and got through the day ok. I posted a tribute on my FB page and in the Herald Sun which I quite enjoyed doing. I found some lovely versus from a book called "Safe Passage" and sent his mum some beautiful flowers. The day after I didn't do so well, with lots of tears and yearning today, just like back then one year ago. Was a difficult day today yet have got through it. Here I go again.Just another hurdle. Like you, I am not missing the "irritations" I only see our relationship as beautiful and whatever irritations would have been dealt with. I have had a number of dreams too. We might be in for it someday. Lots of love....Denise ... View more

Thanks Rarsie, Yes, still doing ok. Had a mini meltdown today instead of a major one. I think I am now grieving for less grief in my life as i come to terms with my loss, and it can't be changed. Sometimes when I feel strong and in control, I get scared that I will forget how I feel so sad about Kevin's passing. It just has to be allowed to disperse into the universe. At the moment I am still clinging a little bit to the grief. I'm glad you are throwing yourself into helping others. I haven't quite found my "replacement" yet. I know it will come. Watching your baby become a baby again must have been heart wrenching. The hardest thing for me was watching Kevin's intellectual demise more so than the physical. For a grown man he coped and complied with me helping him toilet and shower. He accepted the wheelchair without complaint as well. He was trying to make it easier for me and in doing so, I think he realised it was close to time for him to go. He was saying goodbye to his mates. After he died, one of them told me how he said he was over it. He was a very practical man so this would not have suited him. I don't blame him at all. Just miss him as we all do. Keep up the good work...I'm not sure if living in a small community means you are close and supported or a bit lonely. Try to remember the radiance you shared with Kep. Lots of love and hugs....Deni ... View more

I thought that we had been taking the rough road of GBM. Our road has not been so tough. It is heart wrenching to read other peoples posts on their journey. My thoughts are with all who are living through this, today is our 1st anniversary of diagnosis. Remember to take care of yourself too. Hugs Min ... View more