It's great you are using such good strategies to maintained some level of control, whilst at the same time making sure you have the information you need.
I am one of the cynics who do not believe in the concept of positivity(and in fact get very cross with people who think you can cure cancer by being positive. This infers if you dont succeed in curing it you havent been positive enough and therefore its your fault!) although I absolutely accept that there is a mind/body connection. My own experience, after 4 years of stage 4 lung cancer, is that being up beat does help us cope with treatment and side effects which in turn makes life a little easier. And it also makes us a little bit easier for other people to be around!
And it's great your doctors and care team seem to be so much on your side. I remember noting just how hard these drs work to keep us alive. Aren't they great!
... View more
Hi Heather. My name is Brian and I live in Childers.
My experience of the regional/capital city linkages in our region has been very positive.
About three weeks ago, I woke up with severe chest palns. I went straight to Childers hospital, thinking heart attack. They checked me out and advised me to go home and pay close attention to my symptoms.
My GP helped me manage the pain and then referred me to a specialist in B'berg. Luckily I have private insurance, however I believe that when the illness warrants it, the public system is equally responsive.
One specialist checked me out for kidney stones, etc; nothing there. Then he called in a colleague for bone marrow tests; bingo, acute myeloid leukemia. In computing terms, my blood production system has a bug in the software, and it needs a reset.
The RFDS flew me down to Brisbane; excellent care, all the way.
In Brisbane, I was moved quite seamlessly into world class care. I am on a chemo course, with a large array of specialists tracking all manner of parameters; a great example of measurement being the key to good management.
So that is my experience. I am also trying to stay proactive in my recovery, by asking lots of questions and standing my ground if something doesn't make horse sense to me. It's my life, so I had better pay attention.
However, the overall system is peopled by some really dedicated heroes, who really know their stuff. I see it as my job to work with them, especially by cultivating my optimism.
I really hope your sister's journey is equally positive.
Please pm me if I can be of any further help.
... View more
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.